We're AVM Survivors, Here For Your Support...
Parents of AVM Discussions (28)
| Discussions | Replies | Latest Activity |
|---|---|---|
Feeling HelplessI've never been the type of parent that "hovers" or is over protective and I'm very laid back. I don't stress about anything. Until now th… Started by Tobie Stanley |
9 |
1 day ago Reply by Barb V. |
Make-A-Wish EligibilityOur kids are eligible for having a wish granted through the Make-A-Wish Foundation. My son Ryan had his wish of going to a professional mo… Started by Kelly Nelsen |
2 |
1 day ago Reply by Diane K |
AVM in infants...My daughter, who is now 11 months old, was diagnosed with the AVM in utero. I was 34 weeks preg and due to her condition I was referred imm… Started by Chloes mommy (Samantha) |
9 |
Jul 20 Reply by Chloes mommy (Samantha) |
Recovery after craniotomySince surgery seems to be the option with the lowest risk for Ryan, I think we're gonna do it. It won't be scheduled until late July. I'v… Started by Kelly Nelsen |
17 |
Jun 27 Reply by edie pantelis |
Anyone dealing with continuing problems several years out?My daughter AVM was located on in the left tempro parietal/upper gyrus region. Because of its size and depth it was inoperable and she ende… Started by Diane K |
8 |
Jun 26 Reply by Diane K |
Samantha's VoiceI am so thankful to have found this website. Since my daughter Samantha became ill on March 28, 2010 (10 months at the time), my husband a… Started by Aimee Bankston |
3 |
Jun 16 Reply by Jennifer Illg |
New hereI'm so happy to have found this group. Our 10-year-old daughter Katie suffered a brain hemorrhage at the end of February and that is how we… Started by Marsha |
9 |
May 29 Reply by Teresa Sidio |
Anyone else out there have side effects after Linear Accelerator?Sorry to sound so negative...ha ha ...BUT...Jaclyn had Linear Accelerator in April this year and has now had her 3rd grand mal seizure. She… Started by Kim (Jaclyn's mom) |
1 |
May 21 Reply by Sandie Alger(Kasey's mom) |
Surgery Follow-Up Plan?OK, the more I read on here, the more I realize that just like no two AVMs are alike, it seems like every surgeon has a different follow-up… Started by Susan Troop (Lindsey's Mom) |
12 |
May 13 Reply by Maggie (Austin's mom) |
The futureWhat will this be like? Will they drive, go to college, have a job? I guess we never know these things without the AVM challenge, but the q… Started by Mama |
17 |
May 11 Reply by Melanie & Joshua |
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