We are AVM survivors, here for your support.
Parents of AVM Discussions (67)
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 5 week old baby with AVMHello im Hayley, I have 3 boys callum 10 jack 4 and baby Jacob who is 5 weeks old. We found out on the 28th july 2011 that our baby had AVM… Started by hchLatest Reply |
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 one scared momma!Hi everyone. we just joined the site and are so scared and nervous for our little guy. Our son Gavin was born prematurely at 28 weeks. His… Started by Gavin's mom <3 |
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Feb 2 Reply by hch |
 Angiography of the cerebellumThe 18 February is exactly 3 months since our son in 11 years had a large hemorrhage in the cerebellum. And soon he will make an angiograph… Started by Anne Karin |
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Feb 1 Reply by erin lyn hurley |
questions for parents!I was wondering if there is anyone out there whose child was treated prior to a bleed or complication of their avm? if so what was your chi… Started by Gavin's mom <3 |
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Jan 30 Reply by SIBC - MaMa |
 Had anyone dealt with their child having "anger issues after craniotomyMy son is 10 years old and had his craniotomy at the end of October, physically he is doing great, back at school active again with limits.… Started by Kathy (Jacob's Mom) |
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Jan 28 Reply by Kelly Nelsen |
 Any of your children have a hemispherectomy after a craniotomy?My daughter's AVM rupture & craniotomy were 2 years ago next week. 7 months after surgery, she started having seizures and was diagnose… Started by Ashley Grimes |
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Jan 27 Reply by Ashley Grimes |
 Anyone dealing with continuing problems several years out?My daughter AVM was located on in the left tempro parietal/upper gyrus region. Because of its size and depth it was inoperable and she ende… Started by Diane K |
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Jan 4 Reply by erin lyn hurley |
 how long before follow up angioi am interested to know how long you had to wait for a follow up angio Luke had his resection on the 30th September 2011 and the only thing… Started by sam drummond |
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Dec 30, 2011 Reply by Diane -Paul Faherty Mom |
Anyone know of anyone with a a.v.m in this spotEither a adult or a child. My daughter is turning 13 on the oct 22. She was born with a left labial a.v.m she was treated a few times at jo… Started by kikko |
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Dec 27, 2011 Reply by kikko |
 Angio and treatment soon at HopkinsMy 10 year old daughter has had seizures and "episodes" for 6 years now. Back in March she had an episode/seizure and finally got her AVM… Started by Tawnya Sherbondy |
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Dec 27, 2011 Reply by Thomas |
 Make-A-Wish EligibilityOur kids are eligible for having a wish granted through the Make-A-Wish Foundation. My son Ryan had his wish of going to a professional mo… Started by Kelly Nelsen |
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Dec 14, 2011 Reply by Jaynied (Jake's Mam) |
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