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Parents of AVM
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For issues specific to parents of children with an AVM.
Members: 394
Latest Activity: on Friday
Discussion Forum
Need advice please help
Started by Revolutionmom. Last reply by dandelionwishes on Friday. 10 Replies 0 Likes
Introduction and my millions of questions
Started by Revolutionmom. Last reply by Revolutionmom May 13. 9 Replies 0 Likes
Angiogram advisable?
Started by BelleMunches. Last reply by Singledad21 May 12. 3 Replies 0 Likes
Comment Wall
Comment
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Comment by BelleMunches on May 6, 2013 at 6:01am -
What wonderful news, Dancermom! I can only imagine hoe relieved you and your family must be. Thank you for the hope this news brings to all parents! Thank, God!!
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Comment by kk on April 21, 2013 at 8:21pm -
That's wonderful news Dancermom! Yeah!!!
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Moderator Comment by dancermom on April 20, 2013 at 1:44pm -
Ocular migraine: http://www.allaboutvision.com/conditions/ocular-migraine.htm
Members on this site with occipital avms have these, so given our family history, I felt better getting the mri.
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Comment by Svetlana on April 20, 2013 at 12:49pm -
Dancermom, great news! And what doctors said about the headache your daughter had? just a migraine?
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Moderator Comment by dancermom on April 20, 2013 at 12:00pm -
Yay, Starienight! Sorry to leave you all hanging about my daughter's mri. I was in NY for awhile without computer access. My daughter's mri was clear, too. Phew!
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Comment by kk on April 17, 2013 at 6:35pm
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That is wonderful news StarieNite!!! So happy for you :)
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Comment by StarieNite on April 17, 2013 at 2:03pm -
Thank you Barbara and Annabelle's Mom. I hope all our kids will be free of this someday.
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Comment by Barbara on April 17, 2013 at 8:58am
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WOW!!!! GOD BLESS DEVON. THAT IS THE BEST NEWS WE AS A PARENT CAN HEAR. I PRAY EVERY DAY TO HER THAT NEWS.
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Comment by Annabelle's Mom on April 17, 2013 at 6:16am
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To StarieNite/Devon's Mom, That is wonderful!!! I LOVE when I read posts like this. You made my day.
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Comment by StarieNite on April 16, 2013 at 10:31pm
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Devon's AVM is gone. Just had his angiogram today.
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confusion as symptoms mount... time for new dr?
Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
HHT Diagnosis or Suspected
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
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Dreams... changing
Posted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
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One year since my bleed, more or less
Posted by tdz103m on May 2, 2013 at 5:34am 3 Comments 4 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
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