For issues specific to parents of children with an AVM.
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Started by Revolutionmom. Last reply by dandelionwishes on Friday. 10 Replies 0 Likes
Started by Revolutionmom. Last reply by Revolutionmom May 13. 9 Replies 0 Likes
Started by BelleMunches. Last reply by Singledad21 May 12. 3 Replies 0 Likes
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What wonderful news, Dancermom! I can only imagine hoe relieved you and your family must be. Thank you for the hope this news brings to all parents! Thank, God!!
Comment by kk on April 21, 2013 at 8:21pm That's wonderful news Dancermom! Yeah!!!

Ocular migraine: http://www.allaboutvision.com/conditions/ocular-migraine.htm
Members on this site with occipital avms have these, so given our family history, I felt better getting the mri.
Comment by Svetlana on April 20, 2013 at 12:49pm Dancermom, great news! And what doctors said about the headache your daughter had? just a migraine?

Yay, Starienight! Sorry to leave you all hanging about my daughter's mri. I was in NY for awhile without computer access. My daughter's mri was clear, too. Phew!
Comment by kk on April 17, 2013 at 6:35pm That is wonderful news StarieNite!!! So happy for you :)
Comment by StarieNite on April 17, 2013 at 2:03pm Thank you Barbara and Annabelle's Mom. I hope all our kids will be free of this someday.
WOW!!!! GOD BLESS DEVON. THAT IS THE BEST NEWS WE AS A PARENT CAN HEAR. I PRAY EVERY DAY TO HER THAT NEWS.
To StarieNite/Devon's Mom, That is wonderful!!! I LOVE when I read posts like this. You made my day.
Comment by StarieNite on April 16, 2013 at 10:31pm Devon's AVM is gone. Just had his angiogram today.
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Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
ContinuePosted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
ContinuePosted by tdz103m on May 2, 2013 at 5:34am 3 Comments 4 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
After being featured on a number of publications,…
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