We are AVM survivors, here for your support.
PRAYERS & HEALING ENERGY REQUESTS
Information
The place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends.
Members: 31
Latest Activity: on Wednesday
Discussion Forum
Thank God for this Group!
Started by Eugene W. Last reply by dcemrh Apr 26. 12 Replies 1 Like
Dear all, I am new here, but I am glad to know there's a prayer support group on this website. I am also un this journey in search of a medical solution for my AVM condition and wonder everyday what…Continue
God bless all survivors
Started by evrim (wife). Last reply by evrim (wife) Feb 7. 10 Replies 0 Likes
this is my first day as a member of avm survivors. Thank god to i have found all of you together here. My groom (We have just married on 22 july 2011) has celebral hemorrhage on december 20th and he…Continue
Matt's Wife
Started by Barbara H.. Last reply by Louisa Jan 5. 2 Replies 0 Likes
Please everyone pray for Matt's wife. She has suffered a major setback!…Continue
Prayer Request for Madeline Ray
Started by Tammy. Last reply by Barbara H. Jan 4. 3 Replies 0 Likes
Please pray for Madeline Ray. She is a 16yo that has now had a third stroke from an AVM. She had radiation at Mass General Hospital last Friday and had a stroke yesterday. She is doing well but can't…Continue
Comment Wall
Comment
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Moderator Comment by Louisa on Wednesday -
Hi dscemrh....How are you doing?
Roy has been on my prayer list for quite some time! Thanks for sending us the good news! GOD IS SO GOOD!
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Comment by dcemrh on Tuesday -
ROY HEFLIN MEDICAL FUND SUPPORT NEWS THIS WEEK: 5/29/2012
please share with others . . .TO FRIENDS of Roy & Susan Heflin - after almost 1 year Successful dural AVM removal is completed (May 12, 2011), GOD IS SO GOOD - Praise the Lord!
details at this link . . .
http://www.stpaulboca.com/index.cfm/PageID/2646
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Moderator Comment by Barbara H. on Sunday -
I have a prayer request. A woman named Shannon was involved in a motorcycle crash. Severe head trauma. The family is very scared right now. Thanks.
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Comment by Michele_A on May 12, 2012 at 11:51am
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Sending prayers for Kristie and Roy✞
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Moderator Comment by Ninibeth Ramirez on May 12, 2012 at 12:20am -
Thanks!!!!
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Comment by Jaz G. on May 11, 2012 at 10:23pm -
Okay, will be sending up prayers for Kristel!
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Moderator Comment by Ninibeth Ramirez on May 11, 2012 at 8:37am -
Hi everyone. Please I have a support and prayers request for Kristel, Lilly's daughter. Kristel is going to have a radiosurgery...
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Comment by dcemrh on May 8, 2012 at 7:16pm
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PRAYERS REQUESTED - Brain surgery, Craniotomy tomorrow, 5/9 to remove Roy's dural AVM - Thanks for your support!
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Moderator Comment by Louisa on May 5, 2012 at 10:56am -
Hello my dear friends and AVM family!!! Friday, May 4th, 2012 was an AMAZING day for me and will start with Thanking the Lord for HIS divine healing!!! “For through me your days will be many, and years will be added to your life” < Proverbs 9:11>. I went in for my AngioGram, which is considered the Gold Standard test in monitoring an AVM, yesterday with Dr. Christopher Ogilvy from Mass General Hospital in Boston, who is regarded as the BEST NeuroSurgeon in the nation, looked at me and told me that the results of the AngioGram show that I am AVM-FREE was truly the BEST gift I have ever recieved!!!
I want to thank Ben Munoz for this incrediable support site as well as each and every one of you for your ongoing support for me since my AVM journey began back on February 10, 2011! I tell you with a very thankful and grateful heart that after 15 months, to be AVM-FREE” and knowing that no further treatments will be needed brings tears of joy to me and many, many smiles in my heart!
No matter how difficult the trial gets as part of life’s journey; we can ALWAYS count on our blessings – Past, PRESENT, and Future!!! Being an AVM survivor has certainly enriched my life in so many ways ... the grass is greener, there are many more roses to stop and smell, the skies are always clear even thru the clouds, good friends become your extended family and I have a much different perspective on how to truly enjoy the beauty of life. I look forward to reading many, many more AVM Success Stories.
Peace and Health be with you and I thank you again, with ALL my heart, for your ongoing support ♥♥♥✞
God Bless!!!
Michele and so proud to be an AVM Survivor!!!
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 1 Comment 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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feelin a bit frustrated but hopeful
Posted by Patrice on May 28, 2012 at 5:13am 0 Comments 0 Likes
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 2 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
Events
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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