Comment

Comment by Boston Celtics on February 27, 2013 at 12:56am

@mon

radiation is a walk in the park, especially when compared to embo(s.)

Comment by Michele_A on February 26, 2013 at 10:43am

Hi Trisha! Both You and Your husband are in my prayers also for a Blessed surgery tomorrow!

Moderator Comment by Louisa on February 26, 2013 at 6:45am

Your husband will be in my thoughts and prayers, Trisha!

Comment by Trisha on February 25, 2013 at 7:57pm

Well my husband is going in on Wednesday for his first AVM removal. Very scared and nervous.

Comment by Trisha on February 24, 2013 at 12:56pm

Hello everyone. Well my husband is going on Monday for his pre surgical testing. Found out in January that he has a right front lobal AVM that is close to the arms that control his left side and it has to be removed. He is only 41 years old and the chances of it bursting are very high without having the surgery. Since January when he had his first seizure he has not been the same and the most recent dr appointment discovered that his periferal vision in the left eye is having affects from the AVM. Am really scared and dont want to lose him he is my world. We have four handsome boys ages 13, 12 and a set of twins that are 6. I would not know what to do without him in my life. I am also wondering what the outcome of surgery would be what problems might happen or if he will be able to enjoy life again.

Comment by Michele_A on February 8, 2013 at 12:10pm

Hi Mon!

While I am not able to offer any inputs on a support in NYC, I can only share my AVM journey with you that sounds very similar to yours. I had my embolization back in February, 2011 which saved my life and also treated 85+% of my AVM (Blessing #1) and did proceed with radiation in June, 2011. I experienced the exact same feelings of being so fearful of the dreadful side effects of the radiation treatments that doctors MUST share with you, yet was so determined to proceed with whatever I had to so this "beast" could not bring any further harm or fear into my world. I am delighted to share with you that I did not experience one of these dreadful side effects and was told on May 4th, 2012, that my AVM had been obliterated with my embolization and the radiation treatments (Blessing #2 and many more followed thru my AVM journey :))

While that path ahead of you appears dim right now; please know that there is a beautiful rainbow and a pot of gold waiting just for YOU at the end of this trial.

Blessings to you Mon!
Michele

Comment by Lyknthrp on February 8, 2013 at 8:44am

Mon, not sure about a support group in person in NYC, I use this site as support mostly when I need it.

Wishing you luck with your radiation therapy!

Comment by Lisa Grittani on February 7, 2013 at 7:34pm

ty u 2!

Comment by Connie T on February 7, 2013 at 6:53pm

I just wanted to wish you all good luck with the snow storm/blizzard coming our way.

I don't know about the rest of you, but my headaches increase greatly in intensity with rain and snow. I don't know if it's the humidity or the air pressure, but I've got a whopper of a headache now!

Comment by Mon on February 7, 2013 at 12:43pm

Is there a support group in New York City??,I had an embolization of my AVM in Sep 2012,my Dr. acomplished a 90% now I'm facing radiation, I'm going crazy, and scared about the side effects...

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