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Northeast
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Discussion Forum
Specialist in Metro NY area
Started by Ruthiemarie. Last reply by Donna Apr 14. 3 Replies 0 Likes
I would like to see a another neurologist for a second opinion. Can anyone recommend a specialist in the Northern NJ or NYC area? Thanks!Continue
How Did Your Post Op Go?
Started by Rob Forsythe. Last reply by Anita Hopson Apr 12, 2011. 1 Reply 0 Likes
I'm really interested to see how other's post op/rehab went after eradication of your AVM. My four procedures each offered different challenges. It's been a real roller coaster ride! Please share…Continue
Comment Wall
Comment
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Moderator Comment by Louisa on May 24, 2012 at 7:00am -
That would be great Kheli & Erin....Plan something closer to where you live for a gathering. I will be fantastic to meet other people with AVM's....It feels special to know that we are not alone!
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Comment by Kheli on May 23, 2012 at 7:49pm -
I live in Syracuse and think and upstate gathering would be great!
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Moderator Comment by Louisa on April 14, 2012 at 3:02pm -
AVM Survivor Network Event in Boston...June 9, 2013
http://www.avmsurvivors.org/events/new-england-northeast-avm-luncheon
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Comment by Erin Kamery on February 29, 2012 at 8:02pm -
I am also from the Buffalo area and would to have a meet up somewhere.
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Comment by Mare on February 29, 2012 at 7:59pm -
Hey I am game for anywhere...I am in New Jersey...Phily, NYC....
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Comment by Rachel on February 29, 2012 at 7:41pm -
Sounds like we have many people in upstate NY. I live in Rochester. I'm open to either NYC or Boston but maybe an upstate NY meet up would be fun too.
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Comment by Anita Hopson on February 29, 2012 at 7:31pm -
Wow what a coincidence my family is from buffalo! That's an 8th drive to NYC. It's easier to get to Canada or Ohio.
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Comment by Andrea Fisher on February 29, 2012 at 4:40pm -
I would love a meet up some where Im from the Buffalo area so on the weekend (saturday) would be best for me, because my husband would have to do the driving to where ever it is we are going! Sounds like fun :) Cant wait and hope it happens!!!
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Comment by Anita Hopson on February 29, 2012 at 12:43pm
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I'm voting for a meetup in the NYC area. Any ideas?
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 1 Comment 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
Continue
Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
Continue
Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
Continue
feelin a bit frustrated but hopeful
Posted by Patrice on May 28, 2012 at 5:13am 0 Comments 0 Likes
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 2 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
Events
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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