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Comment by just call me jules-babe on October 22, 2012 at 8:23pm

Hi-does anyone know of any places in Ann Arbor, MI, or Chicago, IL, that have no steps to enter/exit or within for rent or purchase?

Comment by just call me jules-babe on October 19, 2012 at 10:41am

@Maritime-my neuro. works out of Henry Ford Hospital: one downtown and one in West Bloomfield. Call Neurology-I think the department is only downtown-they're a student hospital, but they are specialized in neuro.-related stuff.

Comment by Deb C. on October 11, 2012 at 8:10am

Martine,

Welcome. Wish I had some answers for you. But there are people who seem to come up with some. I would recommend joining the Extremity AVM's subgroup if you haven't. That group is for those of us who have or had an AVM somwhere other than the brain. Usually someone in that group has an answer for any question that is posed.

Take care,
Debbie

Comment by Martine on October 11, 2012 at 6:25am

Im new to site and new to having an AVM (uterus). Does anyone have any hospitals,DR, interventional radiologists they can recommend. Im in the Detroit MI area.
Thank you,
Martine :)

Comment by Deb C. on July 24, 2012 at 3:42pm

Hi Mark,

Best wishes on your upcoming surgery.

Take care,
Debbie

Comment by mark on July 24, 2012 at 3:24pm

hi- i,ve been a member for 6months now .having to talk to my doc on sept 7th too set up for my surgery latter on in sept 2012.my avm is located between my left eye &left ear ,3mm big .it has bursted one time before i did not know it .

Comment by Stefanie on April 22, 2012 at 12:53pm

Team4Life, I had fractionated radiation using a NovalisTX machine. It is relatively new to AVMs but has been very effective in treating cancer and tumors. The procedure was painless and does not require holes for a halo. GammaKnife and CyberKnife were too risky for mine but KU Med is set up for those as well I believe. Just went through St. Joseph yesterday on the way back from Lincoln...very beautiful countryside!!

Comment by Team4Life on April 20, 2012 at 9:41pm

Thanks Stefanie, what kind of radiation did you have? So nice to see someone on here from around home!

Comment by Stefanie on April 20, 2012 at 2:58pm

Hi Team4Life!! If you are looking for a hospital in the KC area I know that KU Medical has really good doctors and facilities. I had my radiation there in June with Dr. Fen Wang. If any more info would be helpful just let me know!!
Godspeed!!

Comment by Team4Life on April 20, 2012 at 11:21am

We are from the St Joseph, MO area (Kansas City) and my boyfriend is currently in the University Of Utah hospital in Salt Lake City, UT. They are thinking of emobilizing his AVM today and follow up with radiation. Not sure what hospital back home is set up for his radiation when we leave here.

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