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Mid-West AVMers

This group is for all of us in the Mid-West.

Location: regional-group
Members: 126
Latest Activity: on Friday

Discussion Forum

looking for neurosurgeon recommendations in Cleveland, Ohio

Started by Shirasaya. Last reply by Lisa Frederick Halfacre Nov 11, 2014. 7 Replies

Hi,I'm looking for recommendations for a good neurosurgeon in Cleveland, Ohio. I had a ruptured AVM removed via craniotomy 2 decades ago. I was given a clean bill of health after a long recovery and…Continue

Looking for doctors close to Toledo, OH area

Started by Lidibet. Last reply by Shirasaya Nov 10, 2014. 5 Replies

Hello, I am Lidia, I recently find out I have an AVM in the rigth side of my brain, the neurosurgeon I saw in the hospital said it is grade 2, and wants to do a craniotomy on January, he also…Continue

Where are our Mid-West AVMers located?

Started by Kimi. Last reply by Shirasaya Nov 10, 2014. 20 Replies

Hi. I am Kimi and my husband is Jeff. Jeff had a large facial avm removed at Mayo a year ago. It has since regrown and is much more aggressive. We are currently looking for a new doc (have sent off…Continue

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Comment by TLo on January 27, 2015 at 9:44am
Thank you Deb c! It's so nice being a part of this and hopefully the awesome neurosurgeon I had can help someone else :)
Comment by Deb C. on January 26, 2015 at 3:46pm
Hi Tara! Glad you able to find the medical help you needed and that you joined this site and this subgroup.Love that you want to help others because we all need support on this AVM journey we all are going through. We're also here to lend our support to you as well.
Comment by TLo on January 26, 2015 at 1:02pm
Thank you takemeasiam! I love having people to relate to and answer questions for :) I will keep everyone up to date!
Comment by takemeasiam on January 26, 2015 at 8:38am

Welcome to the group Tara. Glad you found us. I'm glad you found an amazing clinic for treatment. Let us know how your recovery progresses and I hope you are feeling better every day.

Comment by takemeasiam on January 26, 2015 at 8:37am

Comment by TLo on January 26, 2015 at 5:31am
Hi my name is Tara and I am 25 years old. I had a hemmhorage in my left temporal lobe close to my sylvian fissure in August 2014. I just had an embolization and craniotomy on January 13th and 14th. The doctor I had was amazing and from Mayfield clinic in cincinnati where they specialize with brains and spines. I hope I can help someone and I am still recovering very much from the surgery. I am happy to be a part of this group. God bless us all :)
Comment by mrsjessa on December 28, 2014 at 3:23am
Hi everyone! I'm new to this site. My story started in September 1995 and is in my profile! Anyone go uo UIHC?
Comment by Julie on July 7, 2014 at 7:13am
Since 7/11-7/21 is now AVM Awareness Week in MI and WI,

http://www.avmsurvivors.org/profiles/blogs/avm-awareness-week-in-mi...,

how is everyone celebrating, raising awareness, notifying the media regarding your awareness event, etc.?
Comment by StlGirl on March 9, 2014 at 9:01pm
Hi, I live outside of St Louis(O'Fallon Mo) I just got the result of my MRI this past Thursday. I don't have any other information other than I have a cavernous malformation. I have a neurologist appointment on April 4th. Any advice would be much appreciated since I'm just playing the waiting game.
Comment by Julie on February 13, 2014 at 10:12am
If freezing your buns off isn't a big enough of a challenge, I'm sure a lot of people can relate to this: http://michiganradio.org/post/michigan-residents-disabilities-hit-h...
 

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Radiation hair loss

Posted by Kosta on February 21, 2015 at 6:56pm 1 Comment

doing ok but I have a question I had my radiation Jan 27th, my hair started falling a week ago or so. How long it will before they grow back. will they ever grow back? What should I expect from the radiation. So far I felt nothing my life is…

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