We are AVM survivors, here for your support.
Mid-Atlantic AVM Survivors
Information
This group is for anybody in the Mid-Atlantic area (Maryland, Virginia, Washington, DC, Delaware, Pennsylvania, West Virginia) that has survived an AVM, and is looking for (and/or looking to give) support, advice, and a listening ear.
Members: 21
Latest Activity: Feb 3
Discussion Forum
Looking for good neurologist with AVM experience 2 Replies
Looking for recommendations. My daughter had her bleed in March 2007. They did an embolization and 6 months later gamma knife. Her AVM is completely obliterated. However, she's been experiencing odd,…Continue
Started by Diane K. Last reply by Diane K Sep 25, 2011.
What Symptoms Led To The Diagnosis of Your AVM? 1 Reply
What physical symptoms did you experience before your doctor(s) made the diagnosis of your AVM?Fear Not, My Son describes my…Continue
Tags: Arterio Venous Malformation, Symptoms
Started by Rob Forsythe. Last reply by Leslye Wilson Apr 7, 2011.
Comment Wall
Comment
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Comment by Lori Kay Cahen on February 3, 2012 at 1:43pm -
Thank you Leslye!
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Comment by Leslye Wilson on February 3, 2012 at 1:34pm -
Welcome to the group, Lori!
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Comment by Leslye Wilson on December 16, 2011 at 1:48pm
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Welcome to the group, Tracy!
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Comment by Leslye Wilson on July 20, 2011 at 6:24pm
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Welcome, Sydney!
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Comment by Leslye Wilson on June 26, 2011 at 7:51pm
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Welcome Tawnya and Sharon! It is great to have you ladies here.
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Comment by Leslye Wilson on May 23, 2011 at 1:37pm
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Hi Patrice, and welcome to the group! I do know of a few doctors, that reside in the Central Maryland area. Would you prefer to find a doctor in the Norfolk/Washington, D.C. area?
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Comment by Patrice on May 16, 2011 at 6:03am -
I am moving to Norfolk/Hampton Virginia area June 13! I am originally from Richmond and as a child went to MCV for my seizure condition although they just found out why I had them(avm near optic chiasm deep in brain) here at Vanderbilt research hospital in Nashville, TN where i currently live. i am wanting to get some info from you all about some good doctors in region to see and if you know of any treatments available for the deep avms i was told that i wouldnt be able to have gamma knife or craniotomy for the location would make me blind if they messed with it. i am seriously looking to get a 2nd opinion but need to know good doctors any of you may have found.
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Comment by Leslye Wilson on May 13, 2011 at 1:15pm
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You're a strong woman, Lee Ann. Best of luck to you.
Thinking of you and praying for you.
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Comment by Diane K on May 13, 2011 at 11:03am -
Melinda and Lee Ann: all the best, you'll both be in my thoughts!!
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Comment by Lee Ann on May 13, 2011 at 10:43am -
Hi everyone sorry have not been on in a while! To catch you up I have a pretty large AVM with two aneurysms. I am currently scheduled for July for another embo which will be my 9th. I have also had two gamma knifes and stent and coils placed in one of my aneurysms. The aneurysm surgery was two surgeries one in Feb and the other March 23rd. It has taken it toll on me but I am not giving up the fight. I still have more surgeries they say probably by time I'm done it will be close to 20. Melinda you are in my prayers for your surgery! and to all who have surgeries coming. Lee Ann
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