Replies to This Discussion

Permalink Reply by stacey on March 25, 2011 at 6:45am

Hi Suzie!  I have been experiencing the same issues.  I try to stay away from the "poor me" attitude and focus on "why not me?" However, that wears thin after awhile.  I find it hard to make any decisions.  Very forgetful especially after my "mini stroke" the doctors have referred to that I had in December. Two days before Christmas actually.  My new quote is "every time I turn around, there I am." You are not alone! Keep your head up! xoxo Stacey

 

Permalink Reply by mrs sarah major on March 25, 2011 at 6:58am

hi suzi my 18 yr old daughter is in exactly the same situation. we try to pull her out of it but it is not easy when it is not happening to you. she is now on tablets to try and keep her calm but everyday is different at the moment she feels her life is over because  she hasn't had the chance to start it properly .we cannot understand how this feels for her and that frustrates her she said she has a weird feeling in her head like she is not really here. this breaks our heart but we try and stay positive because we know we have a long road ahead   take care xx

Permalink Reply by Mike S. on April 25, 2011 at 8:28am

You have just described exactly how my wife feels everyday.  THe anxiety and stress seem to escalate all of the other symptoms - she keeps thinking that its the seizure meds but really have no answers. 

Permalink Reply by suzie on April 27, 2011 at 12:42pm

Hi Mike,, I just read your blog, story about your wife...wow, she has been through a lot and so have you and your children, no doubt, these things affect everyone in the family, extended family, in different ways, and I am impressed with your ability to write everything down, I know if your wife is feeling like me, she will have a hard time writing about anything, (thank goodness for the ability to use delete on computers :) I keep thinking it might be the meds, it might be the AVM, it might just be getting over the bleed, healing from that insult to my brain, the fact that this thing is mixed in with my "normal" gray matter, or just trying to come to terms with the reality of my situation, being a mom, wife, sister, daughter, friend and all that entails....Life if hard enough and then you find out you have this thing in your head....and it is rare enough that it is difficult to talk about it, I am in the process of trying to find a neuro-psychologist to talk to, to help me to better understand my symptoms, feelings, I am not taking the prescription anti-anxiety or anti-depressants, I am afraid of the side-affects (i did go on anti-depressants years ago and had every bad side affect known, and this was before I even knew I had this AVM),

I think it is great that you are such a supportive spouse, and that you are reaching out to get help, answers....

Mike S. said:

You have just described exactly how my wife feels everyday.  THe anxiety and stress seem to escalate all of the other symptoms - she keeps thinking that its the seizure meds but really have no answers.