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Inoperable AVMs Discussions (11)

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Discussions	Replies	Latest Activity
Has anyone heard of Bevacizumab aka Avastin as possible treatment for Brain AVMs? Hi Everyone, I was diagnosed with a Brain AVM located in my Left Opical Lobe in 2004. Was treated for it with Radiosurgery and was given t… Started by Sandra	5	Oct 27, 2011 Reply by mothers son
Inoperable AVMS I'm curious how others handle the stress of not knowing what might come next? how to plan for the future when there is this big unknown in… Started by Marcia Frost	16	Sep 29, 2011 Reply by Tammy
did you now about Propranolol for some reason propranolol does miracle on hemagioma did somoene ever test it ? Started by jeff	10	Sep 28, 2011 Reply by Tammy
Every AVM is Operable....... My AVM was located in the center of my brain. And yes they did operate on me with radiation. I have been shot three times with radiation,… Started by Troy Garcia	9	Jun 13, 2011 Reply by Jaszi Jazz - Brisbane
Anxiety?? Does any one ever feel a sense of anxiety? That you have a hard time thinking? doing? just being who you were before? I do, it was like tha… Started by suzie	4	Apr 27, 2011 Reply by suzie
Having my AVM surgically removed Hello all. I was told up until a few weeks ago that my AVM was inoperable. I finally found a Dr. that says that he can remove it. My AVM is… Started by David	1	Feb 14, 2010 Reply by stacey
Does anyone get "headache bursts" ? Just curious if any of you with untreatble AVM's ever feel these headache bursts (sorry not sure what to call it) example would be when I c… Started by Lianne	4	Feb 13, 2010 Reply by Lee Ann
2 AVMs, 2 Aneurysms Hi All, Just saw the doctor yesterday, he says I have 2 AVMs, which I knew, but also that I have 2 aneurysms, one of which I knew about, t… Started by Audree Flynn	1	Sep 18, 2009 Reply by Patricia Y Fricke
Holistic treatments? Hello all, Has anyone heard any positive things about holistic treatments and lessening the probability of a bleed? I've been doing some r… Started by Eric Spring	0	Aug 30, 2009
Great Idea This is a great idea, Ben. This a tough sub-grouping to be in and I think a group that that would like a lot of support and exchange of ide… Started by Mike Roberts	1	Aug 25, 2009 Reply by Judy A. Costa