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Gastrointestinal AVMs

I am looking for others with bleeding stomach and intestinal AVMs. Mine has been particularly bad this last year. Had 20 cauterized only to have them rebleed. I get three weeks of iron infusions every three months or sooner right now. Are there others out there like me?

Members: 25
Latest Activity: Jul 7

43 Cauteries last time

Discussion Forum

Thalidomide and GI AVMs

Started by Madere (dancermom) Jan 26, 2014. 0 Replies

Here are some links to resources about thalidomide and GI avms:http://clinicaltrials.gov/show/NCT00389935…Continue

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Comment by Bacu on July 7, 2016 at 7:55pm
Glad to hear all went well. Wishing you a quick recovery.
Comment by WinningJane on July 7, 2016 at 2:59pm

Glad that everything went well. I will still be keeping you in my prayers as you recuperate.

Comment by Alice (Allie) Elaine Mastello on July 7, 2016 at 12:46pm

Came through it well. They did nerve block (shot in armpit of all things for pain ) as well as general anesthia. Recooperating, thanks for all prayers... one finger typing, but doing good

Comment by Bacu on July 3, 2016 at 4:08pm
OMGosh! On top of everything else your dealing with you certainly didn't need this! Never had a broken bone, but oh those leg cramps in the middle of the night are terrible. I assume you'll be limited in activity so let everyone pamper you for a while.
Comment by Alice (Allie) Elaine Mastello on July 3, 2016 at 10:39am

thank you, I will be glad when it is finally attached correctly

Comment by WinningJane on July 3, 2016 at 10:34am

Allie, So sorry to hear. I know how bad broken bones can be. I will keep you in my prayers and sending good vibes your way. Hugs.

Comment by Alice (Allie) Elaine Mastello on July 3, 2016 at 10:10am

Just to let you know, I had one of those home freak accidents. At 4 a.m. on Tuesday I had leg cramps both legs, jumped out of bed falling into the wall, broke big bone in forearm next to wrist and displaced my hand off to the side, mild concussion causung vertgo. Surgery to fix and put plate and rods and screws in Tuesday 5th under general anesthesia. I am typing with one finger and will try to let you guys know sometime after. Any prayers would be helpful

Comment by Alice (Allie) Elaine Mastello on May 23, 2016 at 10:51am

It is great to hear from you all! Thanks for "checking in". We need to do that more often. Bacu, 2 years, wow! I pray that good stretch keeps going! I am doing ok, sailing along as you all are, lots of things to "balance". This year is moving along pretty quickly, it seems. Enjoy the sunshine!

Comment by WinningJane on May 23, 2016 at 6:17am

Bacu, so glad you have had no bleeding for 2 years!!!! Good to hear from you too. I just keep on making plans and keep my fingers permanently crossed! It's good to keep in touch so thanks Allie for getting the ball rolling.

Comment by Bacu on May 22, 2016 at 7:22pm
Hi Gals, Good to hear from you. Thanks for checking in. I'm sorry your having problems with your back and Barret Escphagus Allie. I've been having a bit of acid reflux and cut out the occassional glass of wine and it seems to be doing the trick. Chocolate seems to create acid for me also. This waiting for the Poop to hit the Fan really stinks. No bleeding for 2 years now, going for 3. Keeping you all in my prayers.
 

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