We are AVM survivors, here for your support.
Extremity AVM's Discussions (60)
| Discussions | Replies | Latest Activity |
|---|---|---|
 AVM in lungAnybody have recommendation for doctor in Boston to treat PAVM? My mom was just diagnosed and told it needs to be "coiled." Thanks! Started by Stephanie |
3 |
on Tuesday Reply by A'Lisa Hamilton |
 Useful article for anyone considering alcohol embolizations for arm/leg/or trunk AVMsHello, I just came across a study of 66 patients with extremity AVMs and their responses to alcohol embolotherapy (http://www.hemodinamiade… Started by dancermom |
0 | May 22 |
 AVM in leg and gangreneI was diagnosed with an Arterio -Venous Malformation in my right leg, when I was 18th month baby. I had a lot of surgeries over the years i… Started by tania |
4 |
May 13 Reply by tania |
 GET YOUR STORY OUT THERE!So I'm a student in college, studying Journalism (as a minor) and I am writing a 20 page article on AVM. I am focusing it on my friend who… Started by Jacqueline Nicolle |
15 |
May 13 Reply by tania |
 what to do?My daughter Cheyenne's AVM was found in 2010 on her right ankle. we had surgery last May the Doctor removed most of it but it was going aro… Started by Vonda Lynn Owens |
11 |
May 13 Reply by tania |
 Did anybody undergo resection of their peripheral AVM ?Hi, I have a large AVM under my clavicle which expands heavily to the side of my neck. Despite cerebral perufsion problems it is an aesthet… Started by lakersfan86 |
13 |
May 8 Reply by lakersfan86 |
Has anyone used the "Ask an Expert" feature on the Vascular Birthmarks Foundation website?Hi, I noticed there is a feature that will connect you with an AVM expert at the Vascular Birthmarks Foundation (http://www.birthmark.org/n… Started by dancermom |
1 |
Apr 21 Reply by Kim R |
 Couple question about Venous Malformations (slow flow)Not many here with pure VM (venous malformations) but I thought I'd still post a couple questions. 1- If you have a VM (slow flow) do y… Started by Greg McGuire |
5 |
Apr 4 Reply by Bek |
Avm in face.Im 24 yrs old boy.im having avm in my right of face.it result in disfigur my face.im realy get depressed from that.i need to free of that.s… Started by mandi |
3 |
Apr 1 Reply by mandi |
My 13 year old son has a forehead AVMHi, I joined this group because I got spooked after a meeting with a surgeon about resecting my son's forehead AVM. At this point, the AVM… Started by dancermom |
12 |
Mar 25 Reply by Debra |
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 1 Comment 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 1 Comment 0 Likes
Hi everyone!
I'm a new member here...
I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…
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Of Seizures
Posted by Jaime G. on May 29, 2012 at 7:32am 0 Comments 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Facebook Feature Supports Organ Donation
Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
NUMBNESS
Posted by josh54 on May 28, 2012 at 12:20pm 1 Comment 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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feelin a bit frustrated but hopeful
Posted by Patrice on May 28, 2012 at 5:13am 0 Comments 0 Likes
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 2 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
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