Extremity and Other Non-Brain AVMs


Extremity and Other Non-Brain AVMs

For those of us with AVM's outside the brain. Facial, Spinal, Lungs, Arms, Legs...wherever!

Location: medical/symptom type groups
Members: 575
Latest Activity: 11 hours ago

Discussion Forum

Rowing and foot avms!

Started by munchkin. Last reply by Lyknthrp 11 hours ago. 19 Replies

Chest AVM

Started by Alan Schechter. Last reply by GEP Mar 10. 14 Replies

Comment Wall


You need to be a member of Extremity and Other Non-Brain AVMs to add comments!

Comment by loli yesterday
dear all .
i am wondering if anyone has any experince with AVM chest wall....
anyone got treated with ethyl acohol injection at the site of the avm if , please i need feedback
thanks alot i wish all health and complete recovery ,
Comment by loli yesterday
dear EM
may god bless u and give u complete health
Comment by loli yesterday
hi all, i am new member . am asking if anyone has information about AVM chest wall ... way of treatment and the doctor
Comment by EM on March 10, 2015 at 3:34pm
Hi, I am new to the site but have had a diagnosed AVM for 39 yrs, throughout my foot. I have always suffered from skin breakdown/ infections/ ulcers and have had 5 skin grafts, but have stayed fit and active. The last graft, over 4 months ago, has caused proliferation of the AVM, the graft has not healed, and I am suffering from swelling and pain when not elevated. I am also suffering from neuropathic pain. I wondered if anyone else with an extremity AVM had suffered these symptoms and had any advice for recovery.
Comment by Bo62 on March 3, 2015 at 10:40pm
I live in Manteca, Ca. It's 12 miles from Tracy

Comment by Debra on February 28, 2015 at 12:57pm

Awesome Bo62. It is such a moving experience every time I have been there. Maybe shortly before the Walk, we can get a thread going and see who will be there for the walk. Where do you live?

Comment by Bo62 on February 28, 2015 at 12:56pm
Thank you Debra. I'll be there

Comment by Debra on February 28, 2015 at 12:38pm

Hi Bo62- the AVM walk in San Francisco is for anyone with an avm anywhere. I am an extremity Survivor and they welcomed me just the same, as it should be. Hope to see you there. :)

Comment by Bo62 on February 28, 2015 at 8:37am
On the avm walk in sf on May 3. Is that for brain avm or for anyone with an avm?
Comment by Bo62 on February 22, 2015 at 6:20pm
Hoping everyone is having a good day. Watched Stil Alice today and Julienne Moore was awesome. Hope she gets the Oscar.

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11 month update

Posted by Danijo on March 19, 2015 at 6:23am 5 Comments

Cheers to hope!!

I was…


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