Canada AVM Survivors

A group for Canadian AVM survivors.

Location: regional-group
Members: 172
Latest Activity: on Wednesday

Discussion Forum

Parkes Weber Syndrome

Started by momof2 on Wednesday. 0 Replies

Hi. I'm looking for people in Ontario who have Parkes Weber Syndrome, please.Continue

My story thus far

Started by Barracuda Jun 22. 0 Replies

Hi all! I'm so glad I found this group! I've felt so alone with my experience, I had no idea there were others like me. I'd like to share my story with you all.In 2004, during the birth of my second…Continue

Where in Canada are we all?

Started by Lianne. Last reply by Bick 306 May 18. 90 Replies

I live in the Okanagan, BC just outside of Kelowna.

Neurosurgeon specializing in brain AVM

Started by delight67. Last reply by mattramzzz Apr 28. 4 Replies

Hi all, I am hoping there is someone out there that knows a neurosurgeon in the Toronto area that specializes in treating AVM's? I live in Cambridge, Ontario and I am seeing Dr Murty at The Hamilton…Continue

Comment Wall


You need to be a member of Canada AVM Survivors to add comments!

Comment by Rancher on February 24, 2015 at 1:48pm

Hello everyone. You will notice I sent an email to all the Canadian members.

I just wanted to make sure everyone knew about the up coming


May 3rd 2015 Just in case you missed it, there is a posting in the - General discussion forum. There, you'll find all sorts of information for it. Would hate to hear that someone didn't know about it.

Comment by mama g on January 18, 2014 at 11:36am

Does anyone know if,In canada a person can get life insurance for a pre-exisiting condition?such as avm's?

Comment by len on January 3, 2014 at 11:28am

Hi, Is there a spinal AVM group for Canada?

Comment by Sassy Sue on October 21, 2013 at 8:58pm

I live in Northern Ontario

Comment by Scotty87 on October 2, 2013 at 11:28am

McGill University in Quebec or Dr Fawaz from The Moncton Hospital (New Brunswick).

Comment by Wendywabbit on October 2, 2013 at 11:24am
in vancouver there is dr gary redekop and my surgeon dr heran. i dont if heran specializes in avm but dr redekop does for sure
Comment by Brella on October 1, 2013 at 9:03pm
I meant on the table not in it, lol
Comment by Brella on October 1, 2013 at 9:02pm
I am looking to find other avm specialists in Canada.So far, I have been seen at the Toronto western avm clinic and they tell me if they do embolisation or surgery to remove the avm, I will either stay in the table or become a vegetable. Since then I have not seen any other doctors. I would love to get more opinions before I give up on getting rid if this avm or at least getting it smaller.
Comment by Kim on May 10, 2013 at 12:32am
Hi Singledad21, I had stereotatic radiation in Vancouver last July. I am not sure what system they use there but the do do the stereotatic radiation in Vancouver and they are amazing there ! If you have any other questions feel free to message me, I'm more than happy to help !
Comment by Singledad21 on May 9, 2013 at 11:08pm
Hello all i hope everything is fine question is Stereotactic radiosurgery and Gamma knife RadioSurgery are the same? Also is gamma knife radio surgery available in vancouver bc canada? Thanks all! God bless.

Members (172)


Help Us Help Others

Support Ben's Friends

Bens Friends

Are You in Crisis?

First take a deep breath, then call the National Suicide Prevention Hotline immediately.  1-800-273-TALK for members in the United States.

For international members, please visit for information on where to call.


AVMSurvivors is a peer-to-peer network

To get support, give support.

Blog Posts

Looking For Answers and Worried

Posted by Gary Railman on June 30, 2015 at 5:02am 1 Comment

I was a strong healthy 39 year old Railroad worker until February of this year (2015). I started to notice parts of my legs going numb as well as my groin area. After my legs have gotten to the point where I no longer could lift them over the… Continue

© 2015   Created by

Badges  |  Report an Issue  |  Terms of Service