Information

Canada AVM Survivors

A group for Canadian AVM survivors.

Location: regional-group
Members: 162
Latest Activity: Oct 18

Discussion Forum

Where in Canada are we all?

Started by Lianne. Last reply by swimmom1990 Oct 18. 83 Replies

I live in the Okanagan, BC just outside of Kelowna.

Embolization treatment ?

Started by Aneta . Last reply by Sophie Oct 17. 3 Replies

Has anyone here had the embolization treatment done for their brain avm ?

Canadian Hospitals That Specialize in Brain AVM

Started by Alicia G. Last reply by Jim Oct 1. 5 Replies

Hey guys, Im just wondering if theres anywhere else in Canada that specializes in brainAVMs other than Toronto Western. It can be ANYWHERE in CanadaContinue

where we all live

Started by Josi Summerfelt. Last reply by Greg Brown Jul 21. 3 Replies

I live in Terrace B.C. just outside of Kitimat 56clicks

Comment Wall

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Comment by mama g on January 18, 2014 at 11:36am

Does anyone know if,In canada a person can get life insurance for a pre-exisiting condition?such as avm's?

Comment by len on January 3, 2014 at 11:28am

Hi, Is there a spinal AVM group for Canada?

Comment by Sassy Sue on October 21, 2013 at 8:58pm

I live in Northern Ontario

Comment by Scotty87 on October 2, 2013 at 11:28am

McGill University in Quebec or Dr Fawaz from The Moncton Hospital (New Brunswick).

Comment by Wendywabbit on October 2, 2013 at 11:24am
in vancouver there is dr gary redekop and my surgeon dr heran. i dont if heran specializes in avm but dr redekop does for sure
Comment by Brella on October 1, 2013 at 9:03pm
I meant on the table not in it, lol
Comment by Brella on October 1, 2013 at 9:02pm
I am looking to find other avm specialists in Canada.So far, I have been seen at the Toronto western avm clinic and they tell me if they do embolisation or surgery to remove the avm, I will either stay in the table or become a vegetable. Since then I have not seen any other doctors. I would love to get more opinions before I give up on getting rid if this avm or at least getting it smaller.
Comment by Kim on May 10, 2013 at 12:32am
Hi Singledad21, I had stereotatic radiation in Vancouver last July. I am not sure what system they use there but the do do the stereotatic radiation in Vancouver and they are amazing there ! If you have any other questions feel free to message me, I'm more than happy to help !
Comment by Singledad21 on May 9, 2013 at 11:08pm
Hello all i hope everything is fine question is Stereotactic radiosurgery and Gamma knife RadioSurgery are the same? Also is gamma knife radio surgery available in vancouver bc canada? Thanks all! God bless.
Comment by Dan Wilhelmus on February 25, 2013 at 6:08pm

Bri,

Sorry to hear of your problems. I have only positive things to say regarding Toronto Western hospital and their treatment of my peripheral AVM. I know that they are the best solution for you. Your doctor should be aware of their existence and, if not, should be able to look it up for you. Best of luck and Prayers to you!

 

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The Emotional Roller Coaster of an AVM

Posted by awesome_possum on October 31, 2014 at 9:45am 7 Comments

Everyone asks how I'm feeling all the time. I tell them "I'm good. I feel like my body is back to normal."

My physical body feels fine despite my active AVM. My emotional, mental, and spiritual body has been to hell and back.

I feel…

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