Canada AVM Survivors

A group for Canadian AVM survivors.

Location: regional-group
Members: 164
Latest Activity: Jan 20

Discussion Forum

Where in Canada are we all?

Started by Lianne. Last reply by delight67 Jan 20. 87 Replies

I live in the Okanagan, BC just outside of Kelowna.

Uterine AVM?

Started by honeybeeB. Last reply by Jackie Jan 11. 15 Replies

Has anyone else on this site experienced an AVM in their uterus? I was just diagnosed and I need some advice.

Tags: AVM?, Uterine

uterine avm post embolisation

Started by Jackie Jan 11. 0 Replies

Hi Ladies.Did any of you have lower back pain and pressure while on the menstrual cycle. How did doctors know if embolisation was successful or not and were you monitored after embolisation. I am…Continue

Embolization treatment ?

Started by Aneta . Last reply by Sophie Oct 17, 2014. 3 Replies

Has anyone here had the embolization treatment done for their brain avm ?

Comment Wall


You need to be a member of Canada AVM Survivors to add comments!

Comment by mama g on January 18, 2014 at 11:36am

Does anyone know if,In canada a person can get life insurance for a pre-exisiting condition?such as avm's?

Comment by len on January 3, 2014 at 11:28am

Hi, Is there a spinal AVM group for Canada?

Comment by Sassy Sue on October 21, 2013 at 8:58pm

I live in Northern Ontario

Comment by Scotty87 on October 2, 2013 at 11:28am

McGill University in Quebec or Dr Fawaz from The Moncton Hospital (New Brunswick).

Comment by Wendywabbit on October 2, 2013 at 11:24am
in vancouver there is dr gary redekop and my surgeon dr heran. i dont if heran specializes in avm but dr redekop does for sure
Comment by Brella on October 1, 2013 at 9:03pm
I meant on the table not in it, lol
Comment by Brella on October 1, 2013 at 9:02pm
I am looking to find other avm specialists in Canada.So far, I have been seen at the Toronto western avm clinic and they tell me if they do embolisation or surgery to remove the avm, I will either stay in the table or become a vegetable. Since then I have not seen any other doctors. I would love to get more opinions before I give up on getting rid if this avm or at least getting it smaller.
Comment by Kim on May 10, 2013 at 12:32am
Hi Singledad21, I had stereotatic radiation in Vancouver last July. I am not sure what system they use there but the do do the stereotatic radiation in Vancouver and they are amazing there ! If you have any other questions feel free to message me, I'm more than happy to help !
Comment by Singledad21 on May 9, 2013 at 11:08pm
Hello all i hope everything is fine question is Stereotactic radiosurgery and Gamma knife RadioSurgery are the same? Also is gamma knife radio surgery available in vancouver bc canada? Thanks all! God bless.
Comment by Dan Wilhelmus on February 25, 2013 at 6:08pm


Sorry to hear of your problems. I have only positive things to say regarding Toronto Western hospital and their treatment of my peripheral AVM. I know that they are the best solution for you. Your doctor should be aware of their existence and, if not, should be able to look it up for you. Best of luck and Prayers to you!


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Blog Posts


Posted by Captain Tilly Harkness on January 27, 2015 at 7:04am 21 Comments

After 8 weeks out of hospital I have been feeling quite anxious and worried about my brain bleeding again and how my avm is healing but on Friday I had my first panic attack and it was not nice. My friend took me to my G.P who was brill and gave me… Continue


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