A group for Canadian AVM survivors.
Location: regional-group
Members: 126
Latest Activity: on Wednesday
Started by honeybeeB. Last reply by Luna on Wednesday. 12 Replies 0 Likes
Has anyone else on this site experienced an AVM in their uterus? I was just diagnosed and I need some advice.
Started by Tanyab. Last reply by Sean Apr 27. 1 Reply 0 Likes
Hi all I'm 28 from regina sk and going to a great doc in Alberta dr. Owen in Edmonton this will be my 4th time getting an embolization on my upper thigh. Does anyone know the risks of extremity avms?…Continue
Started by Lianne. Last reply by Julia Apr 16. 69 Replies 0 Likes
I live in the Okanagan, BC just outside of Kelowna.
Started by Emily K. Last reply by Emily K Mar 28. 3 Replies 2 Likes
Hey - Have any of you fellow canadians done the AVM walk in San Francisco in May? I am thinking about going this coming May, but I think it's really too bad that we don't have one in Canada! Don't…Continue
Comment
Comment by Kim on May 10, 2013 at 12:32am
Comment by Dan Wilhelmus on February 25, 2013 at 6:08pm Bri,
Sorry to hear of your problems. I have only positive things to say regarding Toronto Western hospital and their treatment of my peripheral AVM. I know that they are the best solution for you. Your doctor should be aware of their existence and, if not, should be able to look it up for you. Best of luck and Prayers to you!
Hi, I am new to the group. I have a small, pulsatile AVM on the left side of my head under the scalp about 3'' above the left ear. At this point they don't think it is connected to the brain. I waited 5 months to see a Vascular Surgeon only to have him tell me he couldn't help me & that I needed to see a Neurosurgeon. I have been waiting now for 9 months. Does it normally take this long to see a specialist. I live in Nanaimo on Vancouver Island. I find it most frustrating, is it me or what???
Comment by Jim on June 12, 2012 at 5:52pm I was wondering if anyone had any luck (or lack of) trying to get life insurance following avm's. I was recently turned down for life insurance and I am looking for help/suggestions.
Thanks everyone.
Comment by Jim on May 24, 2012 at 4:58pm Great to see a Cdn AVM Survivors forum. I live in Calgary and was diagnosed and treated here. It was a complicated and stressful process which led to treatment at the Alberta Centre for Radio Surgery. All the doctors were amazing throughout the process and so far so good.
New neurosurgeon to iRapidConsult
Dr. Stefan Wolfsberger received his degree from the Medical University of Vienna in Austria. Following his residency under the supervision of chairmen Prof. W.T. Koos and Prof. E. Knosp, he was appointed an Associate Professor of Neurosurgery in 2005. Dr Wolfsberger acquired clinical management skills during a postgraduate MBA in Health Care Management at the Medical University Vienna in 2006-9. Using this knowledge, he successfully implemented and certified his department with the ISO 9001 quality management system. His clinical focus is on surgical oncology, including glioma, pituitary adenoma and surgical approaches to the skull base. Stefan Wolfsberger is currently head of the neurosurgical oncology working group of the Department of Neurosurgery in Vienna. Scientifically, he focuses on advanced imaging techniques including neuroendoscopy, multimodal neuronavigation, 3D visualization techniques, surgical simulation and fluorescence-guidance. He coordinates annual international workshops on diffusion tensor based imaging and pituitary endoscopy in Vienna, Montevideo and Mexico City. At present, he is a consultant for Medtronic® navigation systems and a member of the company’s technological advisory board. Since 2008, Stefan Wolfsberger has been developing a Simulator of Transsphenoidal Endoscopic Pituitary Surgery (STEPS) and is an international partner in the Canada National Research Council’s project for the development of a neurosurgical simulator (NeuroTouch®). He is currently on a clinical fellowship at the Department of Clinical Neurosciences, Division of Neurosurgery, University of Calgary with Dr. Garnette Sutherland.
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Posted by Ben on May 24, 2013 at 10:00am 0 Comments 1 Like
Dear AVMSurvivors Family and Friends,
Celebrating Awareness Months for specific rare diseases are a great way of procuring attention to our cause. By discussing our condition and helping to educate others, our active participation creates…
ContinuePosted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments 0 Likes
Posted by Fish on May 10, 2013 at 3:25pm 1 Comment 0 Likes
My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…
ContinuePosted by Michael on May 2, 2013 at 3:14am 5 Comments 1 Like
Hello there,
how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…
ContinuePosted by tdz103m on May 2, 2013 at 5:34am 5 Comments 5 Likes
I don't know exactly when it happened because I slept through May 1, 2012. All day.
May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…
Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments 2 Likes
After being featured on a number of publications,…
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