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Canada AVM Survivors

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A group for Canadian AVM survivors.

Members: 85
Latest Activity: yesterday

Discussion Forum

calgary vascular clinic 2 Replies

HiI was wondering if anyone has been to the vascular clinic in Calgary, or if any one with an avm outside of the brain has been treated in Calgary?Continue

Started by patricia. Last reply by patricia yesterday.

Where in Canada are we all? 49 Replies

I live in the Okanagan, BC just outside of Kelowna.

Started by Lianne. Last reply by Goldfish Feb 5.

Ontario Disability Support Program 2 Replies

I was wondering if anyone has been succesful in getting disability benefits from your province?Continue

Started by GinaL. Last reply by Neil Feb 2.

Anyone here from Niagara? Or been to Toronto Western Hospital? 22 Replies

Continue

Started by GinaL. Last reply by Stephanie Feb 1.

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Comment by Starr Tze on February 7, 2012 at 8:02pm: New neurosurgeon to iRapidConsult

Dr. Stefan Wolfsberger received his degree from the Medical University of Vienna in Austria. Following his residency under the supervision of chairmen Prof. W.T. Koos and Prof. E. Knosp, he was appointed an Associate Professor of Neurosurgery in 2005. Dr Wolfsberger acquired clinical management skills during a postgraduate MBA in Health Care Management at the Medical University Vienna in 2006-9. Using this knowledge, he successfully implemented and certified his department with the ISO 9001 quality management system. His clinical focus is on surgical oncology, including glioma, pituitary adenoma and surgical approaches to the skull base. Stefan Wolfsberger is currently head of the neurosurgical oncology working group of the Department of Neurosurgery in Vienna. Scientifically, he focuses on advanced imaging techniques including neuroendoscopy, multimodal neuronavigation, 3D visualization techniques, surgical simulation and fluorescence-guidance. He coordinates annual international workshops on diffusion tensor based imaging and pituitary endoscopy in Vienna, Montevideo and Mexico City. At present, he is a consultant for Medtronic® navigation systems and a member of the company’s technological advisory board. Since 2008, Stefan Wolfsberger has been developing a Simulator of Transsphenoidal Endoscopic Pituitary Surgery (STEPS) and is an international partner in the Canada National Research Council’s project for the development of a neurosurgical simulator (NeuroTouch®). He is currently on a clinical fellowship at the Department of Clinical Neurosciences, Division of Neurosurgery, University of Calgary with Dr. Garnette Sutherland.

Comment by Lillian on September 18, 2011 at 9:08pm: Hi Starr,

Thanks for sharing your story. make sure you send us a link to your paper to be published in the Medical Journal

Comment by Starr Tze on September 14, 2011 at 4:10pm: Hi all. My passion is risk management and decision analysis. Here is a story from a patient and her neurosurgeon on AVM treatment decision.

http://viewbeyondthetable.com/2011/09/14/through-faith-and-neurosur...

I will be publishing a paper in the Journal of Medical Decision Making next month. Stay tuned!

Starr
starr@irapidconsult.com

Comment by Bighead on July 6, 2011 at 11:50am: Hi everyone. I've just joined. I have large AVM on my left arm, side and neck, but it's been treated well here in Toronto over the course of many years. I've had a number of surgeries at Western, Sinai and TGH and have quite a bit of experience with the system. I've worked with Dr. Simons at Western and others at the two other hospitals. If I can provide any information let me know!

Comment by Jan Heydon on May 22, 2011 at 8:10pm: Got my dates at last... May 30th - pre-admin and AVM Clinic, May 31st Embolization and June 7th removal... yea!

Comment by Kerry on May 22, 2011 at 7:46pm: I'm in London Ontario

Comment by art wilson lafantaisie on April 20, 2011 at 12:31pm: The daisy Foundation this Saturday at The Poor Alex on Dundas has a hip hop r&b fundrasier going on from 8pm til 2am for davm/avm awareness.With a great lineup of hip hop artist

http://www.clubzone.com/events/345961/toronto/poor-alex-theatre/cha...

Comment by art wilson lafantaisie on April 6, 2011 at 9:25pm: The daisy Foundation has 3 benefits in 4 night first is this thursday here is the link

http://www.facebook.com/?ref=home#!/event.php?eid=196681960363090

the Second one being this fri here is the link as well

http://www.facebook.com/?ref=home#!/event.php?eid=158379980884460

Plus Sunday April 10th with a jazz night featureing Virgal Scott

http://www.facebook.com/?ref=home#!/event.php?eid=195310077166806

Comment by art wilson lafantaisie on March 24, 2011 at 6:25pm: If any one is interested in coming to a great night of 80's music we are having a fundraiser for davm/avm awarness on April 1st here is the link to our event page to the show

http://www.facebook.com/?ref=home#!/event.php?eid=198989780122011

Comment by Jan Heydon on March 11, 2011 at 12:01pm: Hi Stephanie... can I ask you the details of your embolization? I'm waiting for my date to have that done as well ....

Many thanks :)