Information

Canada AVM Survivors

A group for Canadian AVM survivors.

Location: regional-group
Members: 181
Latest Activity: Jun 13

Discussion Forum

Where in Canada are we all?

Started by Lianne. Last reply by Chris Tuttle Apr 15. 92 Replies

I live in the Okanagan, BC just outside of Kelowna.

Uterine AVM?

Started by honeybeeB. Last reply by Laura Tipper Sep 21, 2015. 18 Replies

Has anyone else on this site experienced an AVM in their uterus? I was just diagnosed and I need some advice.

Tags: AVM?, Uterine

My story thus far

Started by Barracuda. Last reply by Barracuda Sep 18, 2015. 2 Replies

Hi all! I'm so glad I found this group! I've felt so alone with my experience, I had no idea there were others like me. I'd like to share my story with you all.In 2004, during the birth of my second…Continue

Neurosurgeon specializing in brain AVM

Started by delight67. Last reply by Scully Jul 17, 2015. 5 Replies

Hi all, I am hoping there is someone out there that knows a neurosurgeon in the Toronto area that specializes in treating AVM's? I live in Cambridge, Ontario and I am seeing Dr Murty at The Hamilton…Continue

Comment Wall

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Comment by sheila fortin on April 15, 2016 at 7:47am
Hi everyone!
My husband and I are going to host an awareness canoe/kayak race here in Kingsville Ontario.
I am looking for any advise on how to do this,,lol
And if we have a Canadian fund to assist others if needed.
If you are from this area and would like to partipate please message me,
I feel it's important for our freinds and families to be in the loop of our disease.
I look forward to hearing from you!
Thanks!
Comment by sheila fortin on February 19, 2016 at 4:38am
And yes I have tried the treatment, the last two were, one was a success, the other not so much, I awoke during it, which was hell! Lol but the location etc, the doc said didn't do much
Comment by sheila fortin on February 19, 2016 at 4:36am
Where is dr. Yakes
Comment by Nico09 on January 28, 2016 at 12:38am

Hi Sheila,
Thanks for your reply.
I'm sorry to hear this :(
Have you considered Dr. Yakes or tried the ethanol embolization? I have been reading that a lot of people have been cured using this treatment...any thoughts on this?
Stay strong!!

Comment by sheila fortin on January 26, 2016 at 3:54am
Hi,
Sorry you are going through this,I have had many surgeries,embolizations sclerotherapy, everyone is different, but they just found another location. Mine is in my left leg,and ankle and hip now, and last week, a small one in the brain.
I am in Canada, but near Windsor, I have been seeing dr. Simons in Toronto a very good team there,,
Comment by Nico09 on January 25, 2016 at 11:02pm

Hi everyone,

I have an AVM on my right jawline. I've had embolization and surgery to remove it about 6 months ago, but I can already feel it growing back, it feels exactly like it did before surgery. I am having an MRI soon.
I'm worried that I'm going to have to have surgeries for the rest of my life....surgeries that are never going to cure it.
I live in Calgary, are there any other Calgarians in this group or anyone that could make a suggestion for a reputable doctor anywhere in Canada?
I have been reading about Dr. Yates and his clinic in Colorado. I don't think we have anything like this Canada. I would really like to go to this clinic, but I can't even imagine the cost it would be to receive treatment in the US.

Any advice is appreciated!
Nicole

Comment by Rancher on February 24, 2015 at 1:48pm

Hello everyone. You will notice I sent an email to all the Canadian members.

I just wanted to make sure everyone knew about the up coming

10th ANNUAL AWARENESS WALK - San Francisco USA

May 3rd 2015 Just in case you missed it, there is a posting in the - General discussion forum. There, you'll find all sorts of information for it. Would hate to hear that someone didn't know about it.

Comment by mama g on January 18, 2014 at 11:36am

Does anyone know if,In canada a person can get life insurance for a pre-exisiting condition?such as avm's?

Comment by len on January 3, 2014 at 11:28am

Hi, Is there a spinal AVM group for Canada?

Comment by Sassy Sue on October 21, 2013 at 8:58pm

I live in Northern Ontario

 

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