Canada AVM Survivors

A group for Canadian AVM survivors.

Location: regional-group
Members: 176
Latest Activity: Sep 21

Discussion Forum

Uterine AVM?

Started by honeybeeB. Last reply by Laura Tipper Sep 21. 18 Replies

Has anyone else on this site experienced an AVM in their uterus? I was just diagnosed and I need some advice.

Tags: AVM?, Uterine

My story thus far

Started by Barracuda. Last reply by Barracuda Sep 18. 2 Replies

Hi all! I'm so glad I found this group! I've felt so alone with my experience, I had no idea there were others like me. I'd like to share my story with you all.In 2004, during the birth of my second…Continue

Neurosurgeon specializing in brain AVM

Started by delight67. Last reply by Scully Jul 17. 5 Replies

Hi all, I am hoping there is someone out there that knows a neurosurgeon in the Toronto area that specializes in treating AVM's? I live in Cambridge, Ontario and I am seeing Dr Murty at The Hamilton…Continue

Parkes Weber Syndrome

Started by momof2 Jun 24. 0 Replies

Hi. I'm looking for people in Ontario who have Parkes Weber Syndrome, please.Continue

Comment Wall


You need to be a member of Canada AVM Survivors to add comments!

Comment by Rancher on February 24, 2015 at 1:48pm

Hello everyone. You will notice I sent an email to all the Canadian members.

I just wanted to make sure everyone knew about the up coming


May 3rd 2015 Just in case you missed it, there is a posting in the - General discussion forum. There, you'll find all sorts of information for it. Would hate to hear that someone didn't know about it.

Comment by mama g on January 18, 2014 at 11:36am

Does anyone know if,In canada a person can get life insurance for a pre-exisiting condition?such as avm's?

Comment by len on January 3, 2014 at 11:28am

Hi, Is there a spinal AVM group for Canada?

Comment by Sassy Sue on October 21, 2013 at 8:58pm

I live in Northern Ontario

Comment by Scotty87 on October 2, 2013 at 11:28am

McGill University in Quebec or Dr Fawaz from The Moncton Hospital (New Brunswick).

Comment by Wendywabbit on October 2, 2013 at 11:24am
in vancouver there is dr gary redekop and my surgeon dr heran. i dont if heran specializes in avm but dr redekop does for sure
Comment by Brella on October 1, 2013 at 9:03pm
I meant on the table not in it, lol
Comment by Brella on October 1, 2013 at 9:02pm
I am looking to find other avm specialists in Canada.So far, I have been seen at the Toronto western avm clinic and they tell me if they do embolisation or surgery to remove the avm, I will either stay in the table or become a vegetable. Since then I have not seen any other doctors. I would love to get more opinions before I give up on getting rid if this avm or at least getting it smaller.
Comment by Kim on May 10, 2013 at 12:32am
Hi Singledad21, I had stereotatic radiation in Vancouver last July. I am not sure what system they use there but the do do the stereotatic radiation in Vancouver and they are amazing there ! If you have any other questions feel free to message me, I'm more than happy to help !
Comment by Singledad21 on May 9, 2013 at 11:08pm
Hello all i hope everything is fine question is Stereotactic radiosurgery and Gamma knife RadioSurgery are the same? Also is gamma knife radio surgery available in vancouver bc canada? Thanks all! God bless.

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Blog Posts

Nothing worth having comes easy

Posted by hanc189 on October 7, 2015 at 7:30am 1 Comment

I have used that quote so many times in my life, but it is so true, and so I have found in terms of treatment for my AVM.

"Nothing worth having comes easy"

September 2014, 8 days after my 29th birthday, I had my first seizure. All I can…


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