Information

Canada AVM Survivors

A group for Canadian AVM survivors.

Location: regional-group
Members: 152
Latest Activity: Mar 28

Discussion Forum

Where in Canada are we all?

Started by Lianne. Last reply by Road Queen Mar 12. 80 Replies

I live in the Okanagan, BC just outside of Kelowna.

AVM specialists?

Started by Emily K. Last reply by Road Queen Mar 12. 6 Replies

I am just wondering if anyone from Canada has an actual AVM specialist... or if there are any in the States. I know Winnipeg is the center for Gamma Knife, and my Neurosurgeon is at HSC, but I just…Continue

BC Doctors

Started by Dive-girl. Last reply by DsSis Jan 31. 10 Replies

Hi everyone,I am curious to know if anyone has been treated for an AVM in Vancouver? I am about to be treated for a cranial facial AVM and would like to hear about your experiences.Thanks!Continue

Support Group in Toronto for AVM Survivors and Family Members

Started by Debra. Last reply by aadar47 Jan 27. 2 Replies

This is from one of our Members of the Canadian Group (Pippa) and I wanted to share this information with you about what's happening in Toronto. Let me know if you have any questions and I can get…Continue

Comment Wall

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Comment by mama g on January 18, 2014 at 11:36am

Does anyone know if,In canada a person can get life insurance for a pre-exisiting condition?such as avm's?

Comment by len on January 3, 2014 at 11:28am

Hi, Is there a spinal AVM group for Canada?

Comment by Sassy Sue on October 21, 2013 at 8:58pm

I live in Northern Ontario

Comment by Scotty87 on October 2, 2013 at 11:28am

McGill University in Quebec or Dr Fawaz from The Moncton Hospital (New Brunswick).

Comment by Wendywabbit on October 2, 2013 at 11:24am
in vancouver there is dr gary redekop and my surgeon dr heran. i dont if heran specializes in avm but dr redekop does for sure
Comment by Brella on October 1, 2013 at 9:03pm
I meant on the table not in it, lol
Comment by Brella on October 1, 2013 at 9:02pm
I am looking to find other avm specialists in Canada.So far, I have been seen at the Toronto western avm clinic and they tell me if they do embolisation or surgery to remove the avm, I will either stay in the table or become a vegetable. Since then I have not seen any other doctors. I would love to get more opinions before I give up on getting rid if this avm or at least getting it smaller.
Comment by Blurred on June 7, 2013 at 9:05pm
Hello. I am the mother of an AVM survivor. My daughter is 11 and in August 2012 she had a horrible headache, we took her to the hospital ( in grande prairie Alberta is where we live)and as we arrived her body started shutting down. We were flown to the Edmonton stollery hospital which is where we found out she had an AVM that ruptured and she had a bleed in her brain. Long story short they did a craniotomy, removed the hemorrhage and she has done amazing since.. Daily headaches and now recently started having seizures . The scar tissue from the surgery has interfered with her brains " electricity" and has been diagnosed with occipital epilepsy due to scar tissue from surgery. This last year has been a roller coaster - we exchanged saving her life for a lifetime seizure disorder .. But we are blessed. Since then we have raised money for the stollery hospital and continue to participate with them for awareness and fundraising. I can't think of any reason why this has happened to my little girl so maybe it's for the simple reason of telling her story and helping somehow. Thanks for listening.. Are there any other people here from grande prairie Alberta?
Comment by Kim on May 10, 2013 at 12:32am
Hi Singledad21, I had stereotatic radiation in Vancouver last July. I am not sure what system they use there but the do do the stereotatic radiation in Vancouver and they are amazing there ! If you have any other questions feel free to message me, I'm more than happy to help !
Comment by Singledad21 on May 9, 2013 at 11:08pm
Hello all i hope everything is fine question is Stereotactic radiosurgery and Gamma knife RadioSurgery are the same? Also is gamma knife radio surgery available in vancouver bc canada? Thanks all! God bless.
 

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Blog Posts

Walking Again

Posted by John P. on March 18, 2014 at 8:00am 4 Comments

My craniotomy to remove my AVM was early in the first month of the year, but at first I could not walk at all and

many who had the same operation I am sure had the same

problem. After two months in the hospital I was able to

use a…

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