AVMs of the Cerebellum

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AVMs of the Cerebellum

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Location: Global
Members: 93
Latest Activity: Jun 19

Discussion Forum

Surgical Removal of Cerebral AVM

Started by Abbey Mar 8. 0 Replies

Hi everyone, I am new to this group and seeking some advice. After many consultations, I have decided to move forward with surgical removal of my cerebral AVM. I have narrowed down my options to…Continue

ok but not OK

Started by livingthenightmare. Last reply by Sharon A. Dawkins Jan 12. 9 Replies

I had a hemorrhage in my cerebellum three months ago that has now been diagnosed as being caused by a pial fistula, a rare type of arterial malformation. I'm waiting for a call from the doctors, they…Continue

New Kid on the Block :(

Started by Jackie_B. Last reply by ouijayes Oct 4, 2015. 4 Replies

Hi everyone! Recent AVM diagnosis....right cerebellum. I have no idea the grade or size just the radiologist reading from ER MRI finding stating a "prominent AVM on right cerebellum" Wanting to see…Continue

Getting Groceries

Started by multistats. Last reply by Howard Mar 20, 2015. 19 Replies

When I was in the grocery store earlier today, I remembered the problems grocery stores provided. This problem was true of stores in general, but was particularly true of grocery stores. Those of us…Continue

Tags: grocery, stores, up, throwing, dizziness

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Moderator
Comment by Lulu on August 12, 2015 at 3:29am

Thanks multistats. That's interesting to know. My AVM is unruptured so maybe that's why I don't know much about surgery. I have only been offered Gamma Knife. But my AVM is large so I would need at least 3 embolisations to shrink it first. Sheffield (UK) won't touch it otherwise.

Comment by multistats on August 11, 2015 at 1:02pm

Hello, Lulu!
Surgery is quite common on AVMs of the cerebellum. I had it done on me. My AVM had already burst, so perhaps there can be a distinction made between surgeries to address an AVM that has not burst and surgeries to address an AVM that has.


Moderator
Comment by Lulu on August 11, 2015 at 3:45am

Thanks a lot Majo. Sounds as if you were incredibly lucky. That's brilliant.

Comment by Majo on August 11, 2015 at 3:33am
Hi,
In my case the doctors said it was the only chance to close the rupture. They weren't able to get to the rupture by angiography. But also that it is very dangerous and that they had no idea what will happen after my coma. So I was very, very lucky. So I guess surgery is the last thing they will try if nothing else helps.

Moderator
Comment by Lulu on August 11, 2015 at 2:47am

Good for you Majo.

Everyone, I always thought surgery wasn't an option for AVMs of the Cerebellum. But some of you have had it. So I'm supposing that I was wrong?

Comment by Majo on August 10, 2015 at 3:49pm
Hello everybody. I'm from Germany and had an open brain surgery at the beginning of December 2014. My avm ruptured and I had no idea that I had an avm. Now everything is out, but I still have some problems with my balance, but looking forward to the future and hope it still will get better.
Comment by Susan T. on August 10, 2015 at 2:18pm

Hello everyone and I recently learned on facebook about 2 possible conditions associated with an injured cerebellum. I have both of them and I am relieved to see these conditions identified.
dysgeusia and dyschronometria

Comment by Suzy E on May 2, 2015 at 10:00am

I just read a very hopeful post from someone who has suffered surgeries over the past 10 years. While they said it was a hard decision, they finally opted for brain surgery and a post angiogram showed AVM obliteration. I had surgery too (albeit a long time ago) and AVM obliteration was the result too. I'm not saying brain surgery is for everyone or even guaranteeing a positive result (I don't know all your circumstances and am certainly not a medical doctor), but it certainly speaks to having hope for a brighter future. At least it did to me. Stay as positive as possible everyone! :)

Comment by Julie on December 1, 2014 at 12:55pm
* not sure what I typed for auto-fill to fill in "indoor", but please ignore that word.
Comment by Julie on December 1, 2014 at 12:53pm
Hi -one of my OTs said this, too; however, my AVM bleed was in the right cerebellum, and my left-side is very, very partially paralyzed and have some indoor donated/twitchy movements and other ataxic-signs, so I'm starting to think that I'm just a freak-of-nature - in a good way.
 

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