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AVM Netherlands

A Dutch support group for people that have/had a AVM.

A place to talk about Aterio veneunze malformatie, different treatments, hospitals, symtoms and more

Everybodt is welcome but treat each other with respect !!!

Greetings and good luck everybody !!!

AVM Dutch

Website: http://www.facebook.com/groups/250340895149524/
Location: Eindhoven
Members: 6
Latest Activity: Sep 7

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Moderator
Comment by dancermom on August 29, 2014 at 7:08am

I have moved here. It's quite an adventure.

Comment by AVM Dutch on August 29, 2014 at 5:59am

Thank you Dancermom that is very kind. You moved to Holland or here on vacation? Greetings :)


Moderator
Comment by dancermom on August 29, 2014 at 2:34am

Hello, I have been living in the town of Bussum for about two weeks now and enjoying myself immensely. The Dutch are wonderful people. :)

Comment by AVM Dutch on July 29, 2014 at 8:39am

Beste Gerrie, ik ben blij weer een Nederlander hier te zien. Ik heb je aanvraag op Facebook geaccepteerd. Welkom in onze facebook groep AVM Netherlands

Comment by Gerrie on July 29, 2014 at 8:34am

Goed initiatief.
Momenteel herstel ik (voorspoedig) van het verwijderen van een carverneuze malformatie in mijn linker temporaalkwab.
20 mrt ben ik in Maastricht geopereerd door dr. Dings.

Comment by AVM Dutch on June 23, 2014 at 3:27pm

I''m very happy: a big victory for the Dutch AVM & aneurysma community today. The Dutch Brain foundation has put up a link to our facebook page on his personal website !! Now people in the furture are able to find more support in difficult times.

Ik ben erg blij, vandaag is er een grote stap gezet voor de Nederlandse AVM & Aneurysma gemeenschap. De Hersenstichting heeft op hun website een link geplaatst naar onze facebook pagina ( AVM Netherlands ). Nou kunnen patiënten makkelijker hulp/steun vinden in toch moeilijkere tijden.

I want to thank the Dutch Brain Foundation/Hersenstichting for there support !!!!!!

Greetings Avm Dutch

Comment by AVM Dutch on June 23, 2014 at 8:25am

You find more information about AVM & Aneurysma on our facebook page: AVM Netherlands. Everybody is welcome !! take care

Comment by Box Barge on June 21, 2014 at 5:22pm

Will try to give my story in a somewhat nut shelve:
In 1990, when I was 29 years old, I elected to have my AVM removed from my brain! I know it was very risky because it was a giant AVM, but so was the grand mal seizures that I was getting because of it. Altogether, I suffered 2 strokes during 7 brain surgeries!!! In the beginning,I was ½ paralyzed, all blinded, could not walk, talk and more!! It took years to recover, but the bottom line is that the Beings Up Above, and my Strength From Within, beat all of the odds, and this is a PRICELESS 2nd Life!! What a journey it was, and every single day is just a TRUE BLESSING that I have. I am a HAPPY CAMPER.
Lisa A. Stuckel

Comment by AVM Dutch on June 19, 2014 at 1:03pm

Dear Lisa, I'm very happy to hear this. Yes computers change a lot. we are now able to support each other. I'm now trying to get the whole Dutch speaking AVM community together. This is the first real dutch avm support group because i noticed to there was nothing out there. You can find my new group on facebook. It has the same name as here AVM Netherlands ofcourse everybody is welcome. Greetings AVM Dutch

Comment by Box Barge on June 19, 2014 at 12:18pm

I would like to find ALL AVM survivors, and today I found YOU, the AVM Netherlands! You see, in 1979, when I was 18 years old, I found out that I had an AVM. Back then, it was very, very difficult to find AVM people or AVM support groups. So, for about 15 YEARS, I knew NOONE who had an AVM, so I felt so, so alone, for way too long. HOWEVER, because of our computer world, and Ben's Friends, at least I do not feel so alone, AT ALL, anymore!!! ;-)

YA HOO!
Lisa A. Stuckel

 

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Hi there

Posted by Geoff on October 23, 2014 at 4:53pm 4 Comments

I am a recently retired journalist from Brisbane, Australia. I had my first seizure in 1973 and after a CT scan was told I had an angioma in the right parietal region of the brain. I'm not sure AVMs were identified by that name way back then. I…

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