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Permalink Reply by Tony L Sydney on October 30, 2011 at 1:00am 
Thank you Leona for your reply and I am so glad you are getting better! Yes, this site & our group are so important to me too. I truly don't know what I would do without our "Survivors".
I mentioned Judy in particular as we live close to each other and we just "clicked" when Tony told me about Judy & we met. As I am not permitted to drive re: seizures, Judy always comes to see me & we go for coffee, walks, shopping, etc & I am truly blessed to have such a wonderful friend. I love all our AVMers as we have at least one thing in common, we are "Survivors" & we can support each other, help each other with strength & hope.
Please keep in touch Leona and "keep on, keeping on" my friend.
Thank you for everyone's replies!
Hi Lesley,
I hope you are getting better, as you say, you have had a turbulant time over such a short time.
Take care my friend. Be happy and healthy. Have a wonderful xmas and 2012 should be a great
year for you and everyone
Take care, Merry Xmas
Amanda J
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Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
ContinuePosted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
ContinuePosted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
ContinuePosted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
ContinueOctober 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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