Replies to This Discussion

Permalink Reply by kidogo on March 3, 2012 at 1:04am

Hi Lori:

The "whooshing" aka bruit went away following my repair of the AVM.I no longer have it. Mind you, I had an embolization to repair the AVM, followed by a craniotomy to complete the AVM.

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ModeratorPermalink Reply by Swami Jim on March 5, 2012 at 1:09pm

It still happens from time to time. Just enough to drive me out of my head! I have no idea why or when it's needed. Some of the after affects just don't go away.

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Permalink Reply by Ngawildflower on April 2, 2012 at 9:15am

The whooshing in my right ear is what prompted the tests that discovered my AVM. It was driving me nuts, I mentioned it to my PC doc and he sent me immediately for a CT scan with dye and they found the AVM in the right side back of my brain on the basal artery. I am scheduled to see the neurosurgeon on April 5. I hope with whatever treatment is chosen the whoosing will go away after!

Have you had treatment yet?

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Permalink Reply by Lori on April 2, 2012 at 11:36pm

Hi,
How are you doing? I hope everything went well on April 5th and you now longer hear the whoosh!

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Permalink Reply by Ngawildflower on April 16, 2012 at 6:32am

Lori, the appt. with the neurosurgeon went o.k. I guess. He says I have a DAVF. I go for an angiogram this week (Wednesday) and he will decide then if the risk of a bleed outweighs the risk to treat it. So yes, for now the whoosh is still with me!

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Permalink Reply by kidogo on April 2, 2012 at 8:24pm

Yes, I had a bruit -"whooshing noise" in my left ear! It was not painful - just annoying. It reminded me when the doctor would place the stethosope to my heart and hear a "thumping noise!" When I was given a CT-SCAN(or MRI), they found an AVM. Pls read my story to find out the outcome.

I am doing ok without the bruit and the AVM (embolization procedure) and craniotomy wew done w/in six months. The second procedure was successful!

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Permalink Reply by Ngawildflower on April 3, 2012 at 2:04pm

kidogo, did you have an AVM or an AVF (fistula). I've read that if you have the woohsing it's always a fistula and not the AVM and that they are different. And it does seem that most of the whooshers posting on here have the fistula's. But they think mine is an AVM yet I have the whoosing... just curious. Thanks!

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Permalink Reply by Sue on April 2, 2012 at 10:01pm

Yes, my whooshing sound was cured after an embo with my first AVM about 17 years ago. Mine became increasing louder over four months of seeing doctors who couldn't figure out what was wrong with me. Most of them thought I was crazy and put me on valium. It was making me crazy 24/7 and the headaches were becoming a problem as well. Finally, it became so loud it picked up on a tape recorder when I put it next to my ear. It also started making musical tones and sent sounds from one ear to the other. The doctors didn't think I was crazy anymore when they could put their ear next to mine and hear it for themselves. It was such a relief in the recovery room when the sounds were gone. But then a few years ago I started hearing the whooshing sound again but it was very faint. That's when I knew something was wrong again because I never forgot that sound. The docs found 2 more AVM. One was treated with another embo, the other with a crainiotomy. I don't hear the whooshing anymore but now I hear my heart beating in my head every night. After all I have gone through I would rather not know if anything else is wrong so I pretty much try to ignore it hoping it will go away. My gut feeling is there is might be another problem but I don't want to look for anymore trouble.

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Permalink Reply by Lori on April 2, 2012 at 11:18pm

Good luck to you. I know what you mean about driving you crazy. This is the worst thing that has ever happened to me and no one can find out what is wrong. I can't get two drs to agree.

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Permalink Reply by BL on April 5, 2012 at 1:02pm

Hi Lori. I had the same problem for 8 years - noise would drive me crazy at times and nothing would take it away. Back and forth to ear specialists for a year and they said it was something I had to live with. I found the only way to make it livable, especially at night, was to make up songs to the beat of the noise... This often worked but there were time I honestly thought I would go crazy... Then in 2009 I found out through a MRI and angiogram that it was a DAVF - not a danger to my life, however, as it drained away from the brain. However, because of symptoms they did do an embo in 2010. The first thing I noticed when I woke up was the quiet - even in the recovery room with so many machines all around! I have had complications since - seizures caused by scar tissue from the embo but otherwise, no noise - it is lovely! There are times when I sit in a quiet room and just listen to the quiet because for years I never knew what quiet was.

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