Replies to This Discussion

ModeratorPermalink Reply by Trish on February 15, 2012 at 12:36pm

Lori I heard it all of my life and never knew it wasn't normal so I never bothered to ask anyone about it. After my bleed/craniotomy it's gone. Weird not to hear it anymore.

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Permalink Reply by Lori on February 15, 2012 at 2:33pm

Trish,
Please be thankful you no longer have this awful whooshing sound.
That means you are cured! Yeah!
I'm about to go insane with the noise.

Lori

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Permalink Reply by Elizabeth on February 18, 2012 at 8:29pm

It is so weird not to hear it anymore...quiet is really quiet now.

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Permalink Reply by just julie from the block on February 15, 2012 at 4:00pm

I don't, but I remember reading something about it on here...maybe do a search on "whooshing"?

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Permalink Reply by Kelleigh Gus on February 15, 2012 at 4:09pm

Ive heard whooshing sounds all my life and I thought it was normal too. When my doctor asked me about it 2 years ago I realized it wasn't normal. I have to take medicine to help me sleep because of it, although I usually only hear it when im laying on that one side.

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ModeratorPermalink Reply by Trish on February 15, 2012 at 4:20pm

I actually found it rather soothing back then. Of course I had no idea what it meant, but ignorance is bliss.

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Permalink Reply by Kelleigh Gus on February 15, 2012 at 4:37pm

My avm got worse, so the whoosing got louder and it kept me up but before then I would always plug my ear to hear it

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Permalink Reply by Lori on February 15, 2012 at 5:19pm

Thanks, I have searched without luck. It's an awful sound that is 24/7 and keeps me up at night. If you don't have it consider yourself lucky. There are 50 million Americans with tinnius but only 3 % have Pusatile Tinius. It is a symptom of AVS and I hope it can be cured.
If you have it, please let me know what you do for relief.
Thanks.

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Permalink Reply by mymomsdaughter on February 15, 2012 at 5:33pm

Before my mom found out she had AVM, her only symptom was whooshing sound (varying in intensity) in her right ear. She had embo almost 3 months ago. Still hearing some but the intensity is much reduced now. We don't know yet whether she might need another embo or the sound may eventually disappear as the recovery continues.

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Permalink Reply by Lori on February 15, 2012 at 6:04pm

Hi, Thank you.
Can you tell me what embo is? I am new to all this. What type of Dr. did she use for surgery?

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Permalink Reply by mymomsdaughter on February 15, 2012 at 9:33pm

Embo is for embolization. It's a procedure that passed glue-like material into the vessels that feed the AVM to occlude portions or all of the arteriovenous malformation. It's not an open surgery. Check out this place for more information: http://www.mayfieldclinic.com/PE-AVM.htm Hope this helps. Neurosurgeons are the specialists treating it.

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Permalink Reply by A Collins on February 15, 2012 at 7:04pm

My whooshing comes & goes, but tends to be more noticeable during migraine. I can remember hearing it sometimes while trying to go to sleep as long ago as age 8.(I'm 40+) I thought it was normal, too, until my AVM diagnosis last April. My mom asked me why I had never told her about it. It never occurred to me to tell her because I didn't know it wasn't normal.

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