I just wanted to get off my chest the frustration my AVM has given me. Before my brain bleed, I use to play soccer and I loved the sport so much! I planned on playing for my school when Summer would end actually. Unfortunately for myself, I bled before the year started and when I finally came home from the hospital, I was told not to get involved in any sport related activities (especially soccer). I couldn't even if I wanted to. My balance was so off and needed a walker for mobility. Now however, all is somewhat better but soccer is no longer in my path and it devastates me to look back on how much I've missed out on. I find it extremely unfair and... depressing to an extent. Like every survivor, I just wish this never would have happened.

As strange as it sounds my AVM experience has made me give up so many things i use to do and love BUT in return it has given me a better outlook in life...take that on board because the small things we take advantage of everyday are the things we are never guarenteed tomorrow. God bless
Permalink Reply by Rich on April 10, 2012 at 7:42am I used to play football (yes football, not soccer!) 11 a side - but i had to give up, my balance and vision wasnt quite good enough. But i tried tennis instead - balance wasnt quite so bad as footie, and u dont have to rotate 360 degrees to play the game.....maybe theres something u can do? I miss football a lot, but i do love tennis now.
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Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
ContinuePosted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
ContinuePosted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
ContinuePosted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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