We're AVM Survivors, Here For Your Support...

We Walked for AVM Awareness!

The walk was great!!! Albeit a tad cold and a little wet. It was still a wonderful event and I want to thank TAAF (with a special thanks to Angela) and Sports Basement for being so wonderful with putting this all together and giving us an opportunity to raise money and awareness for this rare condition. The AVM Survivors Network team raised over $10,000 for this cause! Go Team!!!

Josh and I were very excited to meet our AVM friends/family on Saturday night, and then walking with them today. Ivanna, Doug, Nich, Matt, Kim, Dan, Justin, Jaclyn, Scott, Margie, Greg, Serene, Camellia, Jane, Mary, Greg's nephew & fiance and Margie's friend (sorry I forgot your names,) Jaimee & TJ and ALL of their blue hat supporters, Carolyn & her brother, as well as my family; Taryn, Jason, Jan, Dave, Pam, AK, Billy, Glenda, Trina, Kevin, Summer & Reese... thanks to everyone who came out this weekend to make this event memorable and to support and celebrate our "brainers!" This will be a memorable weekend for me and I have appreciated all of the support and friendship from everyone!

Click HERE for a slideshow of pictures from this weekend. I will be uploading additional pictures as I get them from the other walkers (I already stole some from Nich!) So check back in a week or so to see more pics of this wonderful group of people.

The weekend went by so quickly and I'm sad that it is over! I can't begin to explain how important it has been to make these connections with other AVMers. And I know you all feel the same way. We share a bond from an unfortunate situation, but a special bond just the same.

If you look very closely you can see the Golden Gate was the backdrop for our walk!

And of course I hope that others who attended the walk will post their pics on this thread as well!!!

Shalon

Tags: avm, walk

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Replies to This Discussion

Permalink Reply by Andrea Fisher on May 5, 2009 at 8:59pm: Wow the pictures looked great. I really wish my family and I could have attended. We are aiming for next year. I'm proud of all that attended the walk. Some time I hope to meet anyone in person, more than just pics and blogs! They are great don't get me wrong. Shalon thanks for all your hard work, it means more to me and my family than anything else. This really is the best website out there!!!!; ▶ Reply to This

Permalink Reply by Dianna on May 5, 2009 at 9:42pm: you did a very good job shalon your devotion to the cause is awesome.. thanks for all you do...; ▶ Reply to This

Permalink Reply by Jenirose Torotoro on May 7, 2009 at 4:35am: great job everyone... congratulations!!!; ▶ Reply to This

Permalink Reply by Jaszi Rose on September 25, 2009 at 6:46pm: fantastic!!! wish i could of been but of course with the avm cant get any insurance to cover me in America. all the best; ▶ Reply to This

Permalink Reply by JW Faith/Hope on November 14, 2009 at 8:19pm: when will there be a walk in florida i hope in a near future; ▶ Reply to This

Permalink Reply by Daniel A Sadler on March 8, 2010 at 1:13am: it sounds like it was an outstanding time for you all!
We are planing on making it out next year!; ▶ Reply to This

Permalink Reply by Tori on March 8, 2010 at 1:23am: Congrats and thanks to everyone who participated in the walk. It's awesome to know that AVM awareness is being put out there.

Let me know if there are ever any plans for a walk in NM. I can't walk very far, but I'd roll for it!

BTW - that picture of the Golden Gate Bridge is absolutely beautiful!!; ▶ Reply to This

Permalink Reply by stella on March 8, 2010 at 1:31pm: When will we have one when its a little warm next time ...Shalon i miss you; ▶ Reply to This

Permalink Reply by Jordan Johnson on March 9, 2010 at 3:11am: May I ask who organized this walk, how many walked in it, and who I would need to get in touch w/ to organize a walk in my area?; ▶ Reply to This