The walk was great!!! Albeit a tad cold and a little wet. It was still a wonderful event and I want to thank TAAF (with a special thanks to Angela) and Sports Basement for being so wonderful with putting this all together and giving us an opportunity to raise money and awareness for this rare condition. The AVM Survivors Network team raised over $10,000 for this cause! Go Team!!!

Josh and I were very excited to meet our AVM friends/family on Saturday night, and then walking with them today. Ivanna, Doug, Nich, Matt, Kim, Dan, Justin, Jaclyn, Scott, Margie, Greg, Serene, Camellia, Jane, Mary, Greg's nephew & fiance and Margie's friend (sorry I forgot your names,) Jaimee & TJ and ALL of their blue hat supporters, Carolyn & her brother, as well as my family; Taryn, Jason, Jan, Dave, Pam, AK, Billy, Glenda, Trina, Kevin, Summer & Reese... thanks to everyone who came out this weekend to make this event memorable and to support and celebrate our "brainers!" This will be a memorable weekend for me and I have appreciated all of the support and friendship from everyone!

Click HERE for a slideshow of pictures from this weekend. I will be uploading additional pictures as I get them from the other walkers (I already stole some from Nich!) So check back in a week or so to see more pics of this wonderful group of people.

The weekend went by so quickly and I'm sad that it is over! I can't begin to explain how important it has been to make these connections with other AVMers. And I know you all feel the same way. We share a bond from an unfortunate situation, but a special bond just the same.


If you look very closely you can see the Golden Gate was the backdrop for our walk!

And of course I hope that others who attended the walk will post their pics on this thread as well!!!

Shalon

Tags: AVM, walk

Views: 48

Reply to This

Replies to This Discussion

you did a very good job shalon your devotion to the cause is awesome.. thanks for all you do...
great job everyone... congratulations!!!
fantastic!!! wish i could of been but of course with the avm cant get any insurance to cover me in America. all the best
when will there be a walk in florida i hope in a near future
it sounds like it was an outstanding time for you all!
We are planing on making it out next year!
Congrats and thanks to everyone who participated in the walk. It's awesome to know that AVM awareness is being put out there.

Let me know if there are ever any plans for a walk in NM. I can't walk very far, but I'd roll for it!

BTW - that picture of the Golden Gate Bridge is absolutely beautiful!!
When will we have one when its a little warm next time ...Shalon i miss you
May I ask who organized this walk, how many walked in it, and who I would need to get in touch w/ to organize a walk in my area?

RSS

Follow AVMSurvivors and Ben's Friends

To Support AVMSurvivors.org, Click an Ad. Or Two.

Advertise With Us

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

My story

Posted by chels925 on June 3, 2012 at 10:37am 0 Comments

Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…

Continue

I moved on ... but I cant escape

Posted by Dansky on June 3, 2012 at 7:15am 0 Comments

The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.

I move on ... but I cant escape...

I was at work (luckily I was in office, crowded, people are present, the…

Continue

Away for 5 weeks

Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments

Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…

Continue

the appioment went.......

Posted by Celina on May 31, 2012 at 8:59pm 2 Comments

it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.

Starting to understand everything...

Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments

Hi everyone!

I'm a new member here...

I got diagnosed with AVM this fall. After having really bad headaches for a long time, I decided to visit the doctor. She made the descision to send me on an x-ray and then they saw a 2cm AVM om…

Continue

Of Seizures

Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment

I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…

Continue

Facebook Feature Supports Organ Donation

Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments

We never realize the value of organ donation, until we're on the receiving end.…



Continue

NUMBNESS

Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments

My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…

Continue

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service