We're AVM Survivors, Here For Your Support...

Survey: What year and how old were you when your AVM occurred?

I'm trying to do an unscientific survey of the earliest known AVM as it pertains to members of this Forum. And, the purpose of my survey is to determine how many occurred either the same year as mine (5/17/1988) or prior. The reason for my curiosity is because in 1988 when I suffered my AVM the technology which existed then was nowhere near what it is today. Furthermore, the statistics for complete recovery were literally quite astounding as compared to today's success rate. I might also add that my age in 1988 was 28 years old and I just celebrated my 50th Birthday February 1st.

After my complete recovery I was and still am motivated to write a book about my experience with a full detailed account of my life prior to and after suffering an AVM. Although, writing a book is not a new idea however, the fact that I was able to make a full recovery is remarkable to many people. Additionally, I did not have any permanent disabilities and my life has proven to be an inspiration even still today to those who have known me and for those who have just gotten to know me. After having spent the past 20 years in the Aviation industry I retired in 2006. Today I'm a successful entrepreneur as President & CEO of my own company.

If anyone else would like to weigh in on this question or wish to comment, I welcome your participation.

Thanks,

Michael

▶ Reply to This

Replies to This Discussion

Permalink Reply by michael santos on July 10, 2010 at 12:37pm: I was four years old when I had my bleed. It was in 1980. I was in pre-school when it happened.; ▶ Reply to This

Permalink Reply by Chris Safford on July 10, 2010 at 1:15pm: I was 29 yrs old when I had my first bleed. I know technology wasn't what it is today. Mine didn't show up on a CT scan! Finally, in 1986, the neurologist I had finally sent me for an MRI. He looked at it & said nothing was wrong at the time, but when he read the radiologist's report, he was very serious about it! On the Angioma Alliance website, the founder's daughter, who was a baby at the time, had 13 AVM'S in her brain, all of them arterial, which were removed surgically.
The Website is angiomaalliance.org.
Connie the leader might be able to help you.

Jan Verstraete said:
My AVM ruptured in 1982 (March 7). I was 18 at that time. I had a craniotomy in 1982 and this was followed by 2 embolisations in 2005 and 2006.

Jan Verstraete; ▶ Reply to This

Permalink Reply by Jessica Ables on July 10, 2010 at 1:20pm: Michael.
At the time of my bleed (Sept 2009) I was 24. Best wishes on your book.; ▶ Reply to This

Permalink Reply by Julie on July 10, 2010 at 11:13pm: Age 27 in 1985. Suffered headaches since childhood, no one took it too serious...active child regardless. Cran in 85, thought they got all of it. Pain continued. 2009 stereo used to try to kill the remaining of the avm which was found. Return to doctors in Sept this year to see what process has/has not been made.; ▶ Reply to This

Permalink Reply by Nell Chaudoin on July 14, 2010 at 4:41pm: I was nine (1995) when i first started feeling pain in my hand. Since then I've had multiple surgeries and procedures to reduce the pain and discomfort.; ▶ Reply to This

Permalink Reply by Kathryn Colette Hemenway on July 17, 2010 at 1:38pm: My nephew was 10. He is still having problems.; ▶ Reply to This

Permalink Reply by Alireza on July 19, 2010 at 11:58am: 14 years old (in 2007).; ▶ Reply to This

Permalink Reply by Kathryn Colette Hemenway on July 19, 2010 at 3:35pm: Oops, fixed the typo.

Kathryn Colette Hemenway said:
My nephew was 12. He is still having problems now he is 15. His mom, my sister, died two years before it happened.; ▶ Reply to This

Permalink Reply by William on July 19, 2010 at 6:20pm: Michael,..

AVM Rupture/BrainBleed

Date: July 28/29 2008

My age: 55; ▶ Reply to This

▶ Reply to This

‹ Previous
1
…
10
11
12
Next ›

RSS

Welcome to
AVM Survivors Network: Arteriovenous Malformation Support

Sign Up
or Sign In

Badges | Report an Issue | Terms of Service