We're AVM Survivors, Here For Your Support...
Survey: What year and how old were you when your AVM occurred?
I'm trying to do an unscientific survey of the earliest known AVM as it pertains to members of this Forum. And, the purpose of my survey is to determine how many occurred either the same year as mine (5/17/1988) or prior. The reason for my curiosity is because in 1988 when I suffered my AVM the technology which existed then was nowhere near what it is today. Furthermore, the statistics for complete recovery were literally quite astounding as compared to today's success rate. I might also add that my age in 1988 was 28 years old and I just celebrated my 50th Birthday February 1st.
After my complete recovery I was and still am motivated to write a book about my experience with a full detailed account of my life prior to and after suffering an AVM. Although, writing a book is not a new idea however, the fact that I was able to make a full recovery is remarkable to many people. Additionally, I did not have any permanent disabilities and my life has proven to be an inspiration even still today to those who have known me and for those who have just gotten to know me. After having spent the past 20 years in the Aviation industry I retired in 2006. Today I'm a successful entrepreneur as President & CEO of my own company.
If anyone else would like to weigh in on this question or wish to comment, I welcome your participation.
Thanks,
Michael
After my complete recovery I was and still am motivated to write a book about my experience with a full detailed account of my life prior to and after suffering an AVM. Although, writing a book is not a new idea however, the fact that I was able to make a full recovery is remarkable to many people. Additionally, I did not have any permanent disabilities and my life has proven to be an inspiration even still today to those who have known me and for those who have just gotten to know me. After having spent the past 20 years in the Aviation industry I retired in 2006. Today I'm a successful entrepreneur as President & CEO of my own company.
If anyone else would like to weigh in on this question or wish to comment, I welcome your participation.
Thanks,
Michael
Replies to This Discussion
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Permalink Reply by Keith S on -
26 years old and November of last year (2009) I would love to hear more about your journey btw! I also worked in the aviation industry for awhile and have my pilots license!
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Permalink Reply by mary kate on -
26 years old when it bled in November, 2009...hey, Keith...looks like we have a lot in common
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Permalink Reply by Joe on -
I discovered I had an AVM in 1997 at the age of 35. I have my race car drivers license, which I got last year.
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Permalink Reply by Andrea Fisher on -
My avm was found when I was 23 yrs old. In december of 2006 5 cm left temporal lobe still being treated.
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Permalink Reply by Mike Vanagas on -
September 4th, 2003 at the age of 14 years old. If you ever write that book I’d love to read it .. I’ve thought about it myself
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Permalink Reply by Susan Troop (Lindsey's Mom) on -
My daughter's AVM was discovered when she had a hemorrhage in July 2009. At the time of the hemorrhage, she was nine.
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Permalink Reply by Michael A. Contés II on -
Hi Susan,
First, I'm extremely delighted to hear your comments about your daughter and I'm assuming the she's not had any major complications. I asked the question in this forum about age as so far I believe that I may be the oldest one who suffered an AVM at least more than 20 years ago. And, I have an idea which I presented to a well known TV personality and if all goes as planned I would like to share it with this forum someday.
Regards,
Michael
Susan Troop (Lindsey's Mom) said:My daughter's AVM was discovered when she had a hemorrhage in July 2009. At the time of the hemorrhage, she was nine.
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Permalink Reply by Jaszi Rose on -
found the avm in may 2007 - aged 22 - had radiation in feb 2008 - feb 2010 still there - neuros advised avm occured from birth and i have had it all my life - in the brain stem circle of willis (and later on 2 aneurysms due to the pressure increase pertaining to the avm)
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Permalink Reply by Tori on -
My AVM bled in 2002 and I was 44 years old.
Sorry that isn't the kind of information you're really looking for, but I do wish you much success on your book.
I think that kind of thing would be of interest, and perhaps even be helpful, for many people who have/have had AVMs, or for their families. It is always of interest to me to read about other people's experiences with AVMs and not be limited to just 'clinical' type information.
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Permalink Reply by BeatleChick on -
My AVM ruptured in June of 1990 (it was not known about until then), and I had surgery to remove it in September of 1990. I was 9 years old at the time.
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Permalink Reply by Jake M on -
My AVM was diagnosed on October 31, 2001, but my primary symptoms originated early that same year. I was 24 years old.
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Permalink Reply by Jan Verstraete on -
My AVM ruptured in 1982 (March 7). I was 18 at that time. I had a craniotomy in 1982 and this was followed by 2 embolisations in 2005 and 2006.
Jan Verstraete
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