Replies to This Discussion

Permalink Reply by sfaith on January 29, 2012 at 5:56pm

Ihad my AVM fully removed on Dec 21st after a series of 3 embolizations. It was a 7 cm AVM in the back of my right frontal lobe and I had never experienced ANY symptoms. I'm SO glad it is all over and I am in recovery mode! I am back to work full time for the past 2 -3 weeks, I am a cyclclist and have been back on my bike a handful of times now. I still feel like I have a long way to go to be back to 'normal', but I am well on my way! Personally, I am glad I took control of my AVM rather than waiting for it to take control of me. I have no regrets!

• ▶ Reply

Permalink Reply by Matt W. on January 30, 2012 at 4:00pm

Good to hear you're having a speedy recovery! thanks for the positive comments... they really help. Just wondering, how quickly were you released from the hospital?

• ▶ Reply

Permalink Reply by Nay on January 29, 2012 at 6:52pm

my avm is also in my occipital lobe...never had a bleed,seizure..just blurry vision and headaches. Were in the same boat.
My surgery is scheduled for March 21st. would love to see who comments bc im wondering the same thing...

• ▶ Reply

Permalink Reply by Matt W. on January 30, 2012 at 3:45pm

Yeah I've been wondering for a while now how people who haven't had a bleed recovered from surgery. Seems that the replies are very positive though! Good luck with your surgery.

• ▶ Reply

Permalink Reply by Gavin's mom <3 on January 29, 2012 at 10:35pm

Hi Matt! I know this probably isnt pertinent to your situation but my son had his first anangiogram with embolization earlier this month. the neuroradiologist was able to occlude 95% of his avm and doesnt think he will need anymore surgery as of now. he was diagnosed in the nicu but had no symptoms of having an avm. He is only 4 months old now but he is still developing at the "normal" rate. he was in the picu for 1 day and then a normal pediatric floor for 1 day before being discharged home on day 3 post-op.

Hope your surgery goes well, wishing you the best of luck. our families thoughts and prayers are with you in this scary and unknown time!

• ▶ Reply

ModeratorPermalink Reply by Trish on January 30, 2012 at 10:05am

Hi Matt.
My AVM was in my occipital lobe as well. I had a bleed so I can't really addrewss that but I wanted to tell you...my aunt had an AVM bleed and crani several years ago. She was treated by Dr. Lawton also. I have spoken to him a few times as he was doing a case study involving my aunt and myself. I know he is a very good surgeon and he is very well respected in the neurosurgeon community. Wishing you all the best with your upcoming surgery.

• ▶ Reply

Permalink Reply by Nay on January 30, 2012 at 4:05pm

Matt,
Good luck with ur surgery as well. I will be thinking about u and always in my prayers!!!
Please keep us updated! We can do this :)

• ▶ Reply

Permalink Reply by sfaith on January 30, 2012 at 4:21pm

I spent 3 nights in ICU and 2 nights in a regular room. The PT had me up for a short walk the day after surgery. I went back to work pretty much full time within 3 weeks (I work for myself). I went for my first bike ride exactly 4 weeks post surgery. I still get tired easily and nap way more often than I use to, but I'm sure this too will pass. :)

Good luck, Matt! Keeep us informed and if you have more questions, ask away!

• ▶ Reply

Permalink Reply by Linda on January 30, 2012 at 5:13pm

Hi, I too have am unsure about having GKS for an unruptured AVM. So far I have only had one seizure and I am little bit scared about upsetting the AVM with treatment. Mine seems fairly small compared to others I have heard about (1.5cm) but apparently it is in a eloquent part of my brain (right parietal lobe). It would be good to hear some positive feedback about treatment because this is what my surgeon recommends and I'm too scared not to go ahead as well. I'd never even heard of an AVM before!!! I always thought I was special and unique (lol)

• ▶ Reply

Permalink Reply by Linda on January 31, 2012 at 5:40pm

I am under a miss grieves at the national. Why are you under tha national too?

• ▶ Reply

Permalink Reply by Gerry H on January 31, 2012 at 6:58pm

Hi Linda,
I never had any seizures or bleeds but my neuro said I was just increasing my risks by not having any treatment done. I had GK Jan 5th and do feel some relief that I did it instead of worring aabout what might happen

• ▶ Reply

Permalink Reply by Lynn Anderson on January 31, 2012 at 3:18am

Hi there. I also have an unruptured avm in the same place! with no symptoms other than vision disortion and headaches! my appointment is on the 2nd feb to find out results of angio and if it is treatable.... I must say though i they want to treat it for me, i would accept as its better than living with this time bomb! i wish you all the best with your decision and keep me posted! i may be asking the same question you are aftrr thursdays appointment!! good luck xxx

• ▶ Reply

• ‹ Previous
• 1
• 2
• Next ›
• Page