We are AVM survivors, here for your support.
SSDI Medical Review
Has anyone come up for the medical review after the initial approval to receive SSDI benefits, i.e:
•If improvement is expected, your first review generally will be six to 18 months after the date you became disabled.
•If improvement is possible, but cannot
be predicted, your case will be reviewed about once every three years.
•If improvement is not expected, your case will be reviewed once every
seven years.
What was the outcome? Approved, denied, appeal? Any comments are welcomed and appreciated.
Replies to This Discussion
-
ModeratorPermalink Reply by Swami Jim on -
I really have no idea! I haven't had a gp in allot of years! I don't have a doctor, period! I never asked for my SSDI! University of Kentucky did it for me! I haven't spoken to a doctor in so long, I don't know if I even want to. I'll be the first one to admit, it's been nothing but a bunch of quacks when I've gone close to a hospital. The way I feel, I'll wait until I can get to a university!
Medicare, medicaid.....BLAH! Drives me out of my head....I guess I don't need it!
-
Permalink Reply by Andrea Fisher on -
Funny that you post this i just posted one a few days ago. I currently collect SSD and after 4 yrs and some odd months I was up for a review (dec 2011) this month I received a letter stating that my health has improved and I am able to return to work. Ha what a joke! There is no way my health is better! I just had a 2nd gamma knife in nov 2010. So i now have a lawyer that I am meeting up with on Friday to appeal my case and just got a letter from my dr stating I can not return to work yet! Its like jumping through crazy hoops to get what we deserve. Its frustrating and annoying and stressful and many more emotions. I think they just decide whenever they figure people are do your do and who knows how they truly decide if your disabled or healthy. So I have to fight this and pray I win or who knows what is going to freaking happen. Good luck to you in the future :)
-
ModeratorPermalink Reply by Barbara H. on -
My friend Ben Morrell here may have some advice...
http://www.avmsurvivors.org/profile/benmorrell
-
ModeratorPermalink Reply by Ninibeth Ramirez on -
I have a review every 3 years... I have SSD for a lot of years now.. Because my condition still the same (lost more vision not related with the avm) I have been approved every time... It is important that when you receive the medical review you need to have all the Dr's appointments days and the reason... They are going to ask for the last 3 (I don't remember exactly if its more)
Follow AVMSurvivors and Ben's Friends
To Support AVMSurvivors.org, Click an Ad. Or Two.
Powered by BensFriends.org
This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
Photos
Blog Posts
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
MRI or angio?
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
Continue
Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
Continue
Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
Continue
May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
Continue
10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
ContinueEvents
-
Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
© 2012 Created by BensFriends.org
