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nyc meeting
Replies to This Discussion
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ModeratorPermalink Reply by Connie T on -
I would love to go, Joseph! I live up in Brewster...about 65 miles north of the city. Maybe we could do something in the fall?
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Permalink Reply by Joseph Rizzo on -
Yes I thing the fall will be a better time maybe we can find a place that all can join the group
any surgestions let me know
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Permalink Reply by laurie Bauer on -
Just a thought, we live in Lancaster county PA. Very scenic and lots to do. It would likely much less expensive. There are a lot of hotels that could accommodate groups inexpensively. Just a thought, and there is a lot going on in the fall. Either way we will be sure to attend wherever it is. Looking forward to meeting such a great group of people!
Joseph Rizzo said:Yes I thing the fall will be a better time maybe we can find a place that all can join the group any surgestions let me know
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Permalink Reply by Lee Ann on -
I would love to I am in Delaware. My husband and I could make it a weekend trip.
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Permalink Reply by Joseph Rizzo on
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yea I think it will be a nice day to meet other survivers I knw it says I am joseph Rizzo but I am actually his wife AnnMarie Joseph don"t knw how to use the computer It is to much for him to learn so I do it for him.
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ModeratorPermalink Reply by Connie T on -
I am getting very excited about this, Ann Marie! Thank you so much for spear-heading this get-together.
Love, Connie
Joseph Rizzo said:yea I think it will be a nice day to meet other survivers I knw it says I am joseph Rizzo but I am actually his wife AnnMarie Joseph don"t knw how to use the computer It is to much for him to learn so I do it for him.
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Permalink Reply by Marijo Fasano on -
this is a great idea, I will pass the idea to my sister and her son John who had the bleed. thanks!
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Permalink Reply by john gagliano, jr on -
i know i got an email about thhis but i cant find it
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Permalink Reply by Andrea Fisher on -
I would love to attend something as well. I live about 8 hours away from NYC. So i would be hopefully be able to come :)
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My story
Posted by chels925 on June 3, 2012 at 10:37am 0 Comments 0 Likes
Hello everyone. While I do not have a AVM, mine is only a VM. It is in my right cheek. I have been undergoing treatment for it since 2006. My first treatment was in September 2006. I had some complications (I got an infection and went septic). I…
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I moved on ... but I cant escape
Posted by Dansky on June 3, 2012 at 7:15am 0 Comments 0 Likes
The first rupture of my AVM brought me to total shutdown you could say. from normalcy to all of a sudden a twist of life.
I move on ... but I cant escape...
I was at work (luckily I was in office, crowded, people are present, the…
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Posted by ramona777 on June 2, 2012 at 3:51am 2 Comments 0 Likes
Hi to all my newfound friends . may not be online much in the next 5 wks but wanted to say to each and every one of you, many thanks for your welcome, friendship and support. be back soon. If anyone can advise me how to join AVM australia? Thank…
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the appioment went.......
Posted by Celina on May 31, 2012 at 8:59pm 2 Comments 0 Likes
it went good he wants to do a big test on me he has to open the top of my leg then put a tiny cam up my leg into my head i will be put to sleep for it he wants to look at it.
Starting to understand everything...
Posted by Hannahpoppe on May 30, 2012 at 12:45am 3 Comments 0 Likes
Hi everyone!
I'm a new member here...
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Posted by Jaime G. on May 29, 2012 at 7:32am 1 Comment 0 Likes
I'm being treated for Temporal seizures; simple and complex, aware and absence. The 1st one(went undiagnosed)happened almost 5mos post embolization/craniotomy. In Novemember simple happened 1 or so bi-weekly. This Jan I went inpt for longterm…
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Posted by Armando A. on May 28, 2012 at 8:02pm 0 Comments 0 Likes
We never realize the value of organ donation, until we're on the receiving end.…
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Posted by josh54 on May 28, 2012 at 12:20pm 2 Comments 0 Likes
My AVM was near my right lateral ventricle. It ruptured (very painful) and I had a crainiatomy. After the surgery there were difficulties and I was in a ten day coma. When I awoke the AVM was removed successfully but as a result I have numbness,…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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