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You are in the right spot. This site is full of information and more importantly people who have been through similar circumstances. What your son needs right now is to see you be strong. It's a long journey (I had to learn to walk again also) but everybody's journey is just a little bit different. Hang in there and if you ever need to vent feel free to do it here. He's very lucky to have you and best of luck to you both.

God bless your words and your family....Amen
Permalink Reply by Nicole L. Hulbert on February 11, 2012 at 11:37am HVMello Jana, I am nicole. I am a mother And an Avm bleed survivor. My bleed was in 09 and it seems like I have been carrying this cross forever, my point is; as difficult as your situation is with Chason, it is probably 2x as hard for him to be him! The best gift you can give him now is joy and hope! Ask Chason what he wants to do to be happy? he may be well aware what the Lord's plan is for him, don't be afraid to ask him! Let him take the wheel. By the way, we lived in Mims for 5 years until my bleed, and I had to move home to my parent's to get help with my kids. If you watch Oprah, she has a line about "If God, never gives us more than we can handle, he has way too much faith in me!" I bet he had faith in Chason, since he asked him to share this burden, I be Chason knows in his own head what he needs to get better! ask him ourself!
peace,
Nicole
Permalink Reply by Karen W on February 11, 2012 at 12:59pm I have heard this several times recently and would like to share it with you. And I'm not saying we shouldn't ask God questions (He's God and can handle anything we throw at Him). But we so often ask God when, and even more frequently, why, when we should be asking, WHAT. Lord, what do I do with "this" today? What should I see or learn from this? What can you do through me because of this experience?
Love and prayers to you and yours.
Permalink Reply by Jana on March 4, 2012 at 6:50am Thank you all for your kind words and prayers<3 I know God has chosen each every single one of us for a reason and together in his graces we are all stronger than sometimes we may think we are:-) I am grateful and blessed to have this outlet where I can share my emotions and not feel like I'm alone<3 Chason is coming along one day at a time .... that's a blessing in itself<3 God bless each and every single one of you<3
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Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
ContinuePosted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
ContinuePosted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
ContinuePosted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
ContinueOctober 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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