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ModeratorPermalink Reply by Barbara H. on October 7, 2011 at 9:26am

Hi Jewel. It looks like you are in the Detroit MI area. I did a search for you...http://www.avmsurvivors.org/main/search/search?q=Detroit%2C+MI
It looks like a lot of members there go to the Henry Ford Hospital. Maybe you could call their neurology department. Good Luck!

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Permalink Reply by Greg K on October 14, 2011 at 4:33pm

Jewel, Congenital simply means we are born with it, NOT genetic. I think I have read of one type of avm(HHT) that can be genetic. Hope this helps, good luck -GK

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Permalink Reply by Dug on January 9, 2012 at 10:38am

I'm just joined this site. So, I may be a bit late with my reply.

If you're still looking, you should contact Michigan Head and Spine.

http://www.mhsi.us

Dr. Fernando Diaz specializes in AVMs.

http://www2.mhsi.us/doctors/diaz/

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Permalink Reply by Jewel H on January 9, 2012 at 6:54pm

Thank you I will add him to my short list of 2 total!

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Permalink Reply by Larry B on January 9, 2012 at 10:26pm

You can check out Dr Awad Shah at the Insight neurosciences institute in Grand Blanc. He performed craniotomy and repaired my AVM after my bleed. I am alive and doing well now 6 months after.

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Permalink Reply by just julie from the block on January 10, 2012 at 6:14am

Hi Jewel - I'm sorry to hear that - Dr. Donald Seyfried at Henry Ford Hospital did mine. He works both downtown Detroit and West Bloomfield (Oakland County)...just specify which location you prefer when you schedule.

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Permalink Reply by Tina B. on February 3, 2012 at 12:49pm

I didn't know they were hereditary... does that mean I should have my kids checked out??

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