Replies to This Discussion

ModeratorPermalink Reply by Kim (Jaclyn's mom) on February 10, 2012 at 8:42pm

Hi, My daughter is in 10th grade and she has an AVM in her brain. She is very interested in connecting with you about your project. She also has her story posted on Youtube. Please email her at soccergoofgirl@yahoo.com or facebook @ Jaclyn McDermott

http://www.youtube.com/watch?v=a6lnvyqDWJM

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Permalink Reply by DeAndra on February 10, 2012 at 10:25pm

I had a hemorrhage just over a year ago due to my AVM. I was almost five months pregnant (I actually learned that I was having a boy while in the hospital following the hemorrhage). I have posted a couple of blogs talking about my day leading up to the avm and then my experiences after, my pregnancy, and the side-effects I dealt with from the AVM. I will be more than happy to give you any information that you need to write your paper. I am actually excited to know that someone out there is doing something like this to educate youth about the condition! Bravo to you and thanks! If you have any questions, or want any information, email me at dstevens86@live.com .

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ModeratorPermalink Reply by Swami Jim on February 10, 2012 at 11:08pm

Don't be afraid to ask me. I would do anything I can to help. This is what it's all about us here. We all need each other!

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ModeratorPermalink Reply by Ninibeth Ramirez on February 10, 2012 at 11:17pm

I will liove to help..  Tell me exactly what do you need and how much information.  Ninibeth. . 

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Permalink Reply by Tina B. on February 11, 2012 at 7:07am

if you still need some help.... I have written my story out.... maybe I could help you.... let me know... ~Tina~

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ModeratorPermalink Reply by Louisa on February 11, 2012 at 7:31am

Katrina, if you would like to read my story, click on my name...Louisa C...and read my profile. Good luck!

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ModeratorPermalink Reply by Suzy E on February 11, 2012 at 11:40am

Katrina,

You can also go to the success stories site to give your report a positive spin and find some other people who can help you out. Good luck!

Go to http://www.avmsurvivors.org/group/s

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ModeratorPermalink Reply by Swami Jim on February 11, 2012 at 11:47am

Oooooh, good point there Suzy!

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Permalink Reply by Manux on February 12, 2012 at 2:22pm

If u are still in need of help, I would love to help u too, feel free to contact me nytime, takke care pls XXX

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ModeratorPermalink Reply by Barbara H. on April 9, 2012 at 3:52pm

How is the project coming along?

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Permalink Reply by James Larken Smith on April 9, 2012 at 8:31pm

Hi Katrinam. I would be happy to help you out. I am 8 years post surgery on a brain AVM.

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Permalink Reply by Ben Morrell on April 9, 2012 at 9:09pm

I would be happy to help too. Feel free to read my profile and you can message me at any time.
I'm 50 years old. I first found out about my AVM in 1991. It measured 3 cm back then and I refused treatment for it. In 2007 I started to have some problems. It was discovered that my AVM got bigger and measured 5 cm. I agreed to have the Gamma Knife. In 2010, I started to have some other problems. The dr.s aren't sure if my problems are from the AVM or from the GK. I now have two small AVMs left and I refused treatment again. I am presently disabled with: uncontrolable muscle movement disorder, uncontrollable seizures, chronic pain, cervicle dystonia, and memory loss. I think that's it. I could have forgoten something - LOL
I hope this helps you. Good Luck and I hope you get an "A". :)

Ben

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