We are AVM survivors, here for your support.
In need of POSITIVE brain surgery stories
In exactly two weeks I will be getting brain surgery to get an AVM removed. At the age of 25, this will be my first surgery ever, so as you can imagine, I'm incredibly anxious about the experience, and the doctors haven't really provided much psychological comfort...
Now I'm sure like the rest of you, when I found out I had an AVM and needed brain surgery to treat it, I went straight to google, and quite frankly, the stories that come up are pretty scary and not comforting at all, and most people who post on the discussion boards are people dealing with pain/emotional distress post-surgery (I'm sure that will be me pretty soon), but rather than find comfort in this, the stories have only increased my fear about going under the knife, because I don't come across many positive stories.
I'm sure that in a months time I will need to utilize the discussion boards to talk about the pain and exhaustion I am feeling after surgery, but right now I need positive stories about brain surgery, so If anyone has had a POSITIVE experience with brain surgery, can you please comment about it so I can get pumped up for my surgery on June 16th?
Any help or words of encouragement you could provide would be greatly appreciated!
Replies to This Discussion
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Permalink Reply by BEANIE on -
Brooke, you are an amazing girl. I know you will be okay after your surgery! I was 20 when they found my AVM which was in the right temporal lobe. The technology they have now has improved so much. I went thru a lot bc not like you, I was afraid, I"m a wimp, lol
I only spent two weeks in the hospital and they let me go home. I was determined to walk. I had a weakness to the left. I have lived my life to the fullest. I have worked in some of the best jobs, I have a daughter. I drove until I gave up my license because my eyes got too bad. I'm alive because I was luck they found it when I was young.
Your a very lucky girl. Stay strong and keep thinking positive.
I'll be watching for your posts!
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Permalink Reply by Starr Tze on -
Dear Caity,
This new site may help http://viewbeyondthetable.com/. Its written in collaboration between AVM patients and neurosurgeons. The upcoming post talks about how a medical school student in her 20's deal with her AVM treatment decision.
From our vascular neurosurgeon on your story:
Many patients do very well with surgery. I am sure your physician will do the utmost to avoid the risk of complications.
Take care,
Starr Tze
starr@irapidconsult.com
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Permalink Reply by Starr Tze on
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Hi Caity,
I hope you will like this positive brain surgery story on AVM.
http://viewbeyondthetable.com/2011/09/14/through-faith-and-neurosur...
Best,
Starr Tze
starr@irapidconsult.com
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Permalink Reply by Bernie on
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Hi I am 44 and the surgery earlier in july this year... I have two kids and while initially there was some impact on my left that was from the axm bleed but not the surgery which is great because u are under strong pain killers generally fine but for loss of appetite and difficulty to sleep on the Sudetenland where the avm was removed and the crsinatonmy.. Waiting for crainiplasty surgery when life should get closer to normal
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