Tags: TN, recommendation
Permalink Reply by RobinsonClan2011 on February 14, 2012 at 3:03pm I see Dr Lucienne Reid-Duncan in Egg Harbor Township, NJ for neurology. She's wonderful and her bedside manner is great too. She's out of Atlantic Care group. My Neurosurgeon, Dr Ciro Randazzo, is even better yet and he works out of Atlantic City Medical Center, City division and is affiliated with Jefferson. They are both great. They tell me what they're doing and why and also give me options before they do anything. If you would like more info on them please let me know!
Permalink Reply by Andy Lee on March 30, 2012 at 4:56pm RobinsonClan, We are sad to hear that you had two bleeds. My wife had her bleed last year April. Could you tell me where was your second bleed and what contributed to it? Did it occur within a year? We have so many questions and my wife is so terrified of having another bleed.
Was there any symptoms to the second one? We sorry for the questions. We pray you will be okay.
My wife has a 4mm AVM left brain. She had a Gamma Knife treatment at Barrows,AZ. They are one of the world best in this type of procedures. Our Doctor is Dr. Nakaji who well published.
Permalink Reply by RobinsonClan2011 on April 1, 2012 at 10:01pm I have been lucky enough to never have had a bleed. I think you might have been replying to someone else. Sorry for the confusion! And I'm very sorry that you've had a bleed, I am so terrified that I'll have one as I still have my aneurysm and AVM. I had Gamma knife treatment as well and it has already started working. I'm very lucky. I've had amazing care and wonderful doctors and hospital care. Please, if you have any questions for me never hesitate to ask but I'm not sure you're directing them at the right person because I don't feel that I have the right answers. Let me know if you have any other questions.
Permalink Reply by Ed B on March 30, 2012 at 4:44pm Whatever you do, stay out of Philadelphia. If you have to go to Philadelphia, go to the University of Pennsylvania. I was at Jefferson, and they ruined my life. The lie to me, and did not care. The care that I receive was horrible at last. They did not care. Go to Arizona, and headed the Barrow Institute
Permalink Reply by Birdie on April 2, 2012 at 1:39pm I highly recommend Dr A. Berenstein, of Roosevelt Beth Israel Hospital in NYC. He is the head of the endovascular dept, top of the line staff and methods, years of experience, and most importantly a sweet demeanor with a great bedside manner. Works with pediatrics and adults. He saved my life, as he has done and G-d willing will continue doing with many more lives to come. Please feel free to contact me for more info... below is just one link about him...:
http://neuro.wehealny.org/endo/staff_alejandro-berenstein.asp
-Birdie
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Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
ContinuePosted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
ContinuePosted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
ContinuePosted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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