We are AVM survivors, here for your support.
How To Make Our Community Easier to Find
BEGIN ALICIA'S TUTORIAL---------------------------------------------------
I was asked to share how to post a chiarisupport badge on your site or blog.
Posting the badge on your site or blog is fairly easy. It is a good way to share with others this site and let others know you are apart of this community.
It is on my blog:
Directions:
First on the Home Page under "Main" on the right side column you may have noticed a box that says "Badge" and my photo (yours will be there on your own page)
Click "Get Badge" under the badge to get the badge. It will take you here:
On this page you can customize your badge. You can change the size. 3 options. Change the background color and the text color. You can share it on facebook. Add it to Myspace. The embeded code at the bottom is what you click and copy to paste on your site or blog.
Now depending on what blog you have or site there will be a different place to put it.
I have Blogger. Under "Design" they have "Add a Gadget" where you can select the HTML/Java Script Gadget and paste the embeded code there. I can give more detailed instructions if I know what everyone is using.
To see what it looks like on another site customized here is mine below (also just updated with new post on Chiari Walks!!)
http://chiari-life.blogspot.com
If you have any questions on how to post it somewhere, please feel free to ask me!:)
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Blog Posts
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
MRI or angio?
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
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Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
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Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
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May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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