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Permalink Reply by John L on September 1, 2010 at 12:39pm

I had a seizure 6/10/10 that brought me to recognitiion of my AVM, No Bleeding which from what I have seen is the best. Depending on location and size seems to have an affect on treatment. I had gamma on 7/14, assuming your AVM is not extremely large then it seems that you only have 1 treatment of gamma.
If the AVM is extremely large or location then maybe emobilization to shrink the AVM and then gamma.
My gamma treatment was 57 minutes. I went in @ 6am and left the hospital @ 2pm. I went back to work too soon as it took me close to 2 weeks to get my strength back from my seizure and gamma.

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Permalink Reply by Sandie Alger(Kasey's mom) on September 1, 2010 at 5:21pm

Hi John, Well, between then(when I posed the ?) and now, my child, who is 3+ yrs post gamma, has had one embo followed 5 days later with a craniotomy. But it's finally gone and she has no deficits, no headaches, no problems whatsoever. I think perhaps it was meant to be: the gamma shrunk it considerably, the embo took away 50% of what was left and then the craniotomy was made much less risky because fo that. Her avm was originally 2.5cm x 3.5 cm--not huge, but not small either.

John Low said:

I had a seizure 6/10/10 that brought me to recognitiion of my AVM, No Bleeding which from what I have seen is the best. Depending on location and size seems to have an affect on treatment. I had gamma on 7/14, assuming your AVM is not extremely large then it seems that you only have 1 treatment of gamma.
If the AVM is extremely large or location then maybe emobilization to shrink the AVM and then gamma.
My gamma treatment was 57 minutes. I went in @ 6am and left the hospital @ 2pm. I went back to work too soon as it took me close to 2 weeks to get my strength back from my seizure and gamma.

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