We are AVM survivors, here for your support.
getting people to understand
Over my winter vacation from college i decided to go to one of the local cheerleading competitions that my old team was competing at. As many of you here might know when I was diagnosed my neurosurgeon told me no physical activity especially cheerleading because being a base for the stunts I used to get hit in the head on a regular basis. While I was at the competition I got alot of question, as I expected. I don't really like getting asked all the questions, but I've learned to get used to it. The only question that really bothered me came from the person who owns the team i used to dance and cheer for who is also my friends mom and my moms friend. Her question was, "So Erin, are you ready to come back?" I responded by reminding her I wasn't supposed to be doing any physical activity. Her response, "well a football player did it." I think the publicity Mike Patterson the Eagles player that was diagnosed with an AVM at the beginning of the season has caused more confusion and misinformation among the public than anything. How do you go about telling someone, "Well the news is wrong, an AVM is a serious condition" when everyone is so influenced by the media.
http://www.bleedinggreennation.com/2011/8/21/2375395/mike-patterson...
Replies to This Discussion
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Permalink Reply by Anita Hopson on -
I've been dealing with explaining my AVM since I was 13. And it is so frustrating when people say "oh you had an anuerysm!" and I'm like no, I ha an AVM and people can't seem to understand that there is a difference. What bothered me the most was the fact that even my family would say "accident, injury, and brain thing." when the football player had the anuerysm I was also pissed bc people were calling and Facebook messaging me to tell me that they learned about what I had. My suggestion is this: blog about it blog about it. I want to write a book about my AVM maje people aware of their ignorance. I mean the first time I tell you what it's called should be the last time b
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