Replies to This Discussion

Permalink Reply by Dawn on January 5, 2010 at 10:04am

Hi Ruth,

I will pray for little granddaughter. She must be so frightened and confused right now. The following was sent to me in an email from a lady at my church who prayed with me prior to my having gamma knife treatment, maybe this can provide strength to you and your loved ones as well:

Here are a few things out of the book Fear Fighters:

"When God has asked me to do something that seems impossible for me, I have to preach to myself to defeat the fear and uncertainty that try to control me. I have to preach these three things to myself. They have become myfear fighters. I encourage you to make these declarations over your; situation.
*1. Jesus is with me and He has all power.*
Matt 28:18-20 "Lo, I am with you always, even to the end of the
age." So, when you need to step out in faith for whatever challenge you
face, preach to yourself, "Jesus is with me, and He has all Power!" Don't
back up. Don't you tremble. Don't be afraid! Fear not! I have all
power! Remember be like the 3 Hebrew boys in the fiery furnace...when
Nebuchadnezzar looked in and saw 4 men, the fourth was the Son of God. Dan
3:24-25
Remember God Has All Power over your situation.... your situation doesn't
have power over you!!!

*2. God is at the bottom.*
* * No matter how low the trials of life take me, God is at the bottom.
When I feel I have hit rock bottom and that the challenges are too great to
overcome, God is there. Moses was talking about how mighty and what
miracles God did on the mountain top, but that God is with people not only
when things are going right. Deut. 33:27 "The eternal God is your refuge,
and underneath (bottom) are the everlasting arms" also translated..God's
arms are underneath you at the bottom. No matter how deep the valley you
have to walk, God's presence is deeper. Look for God at the bottom of your
situation.

*3. God has given to everyone a measure of faith. God has dealt to each one a measure of faith Rom 12:3 There is; nothing that god will require of me for which I don't have the faith. He
has given me the measure of faith I need to please Him. So whatever the; challenge I am facing, I preach to myself, I have the faith for this! Jesus was saying to Simon Peter "When Satan is attacking you, the most; important prayer that I can pray for you is that your faith will stand
through this process you are going through...that your faith will not fail! It just takes faith the size of a mustard seed to start your faith to grow

*Dear heavenly Father,*
*I come to You to declare the truth that Jesus is with me, and He has all
power. I declare that You are the God at the bottom when I feel like life
is over and I cannot go on. I choose to believer that I have faith for
this....that You have given me a measure of faith to become an effective
fear fighter ---- and win! I submit my life completely to Your lordship Jesus. I choose to face off with my fears and learn to use Your supernatural fear fighters to live a life of victory over all fear. In Jesus Name, Amen.*
> **
> *2 Tim 1:7 " For God has not given us a spirit of fear, but of power and of
> love and of a sound mind."*
> **
Your grandaughter will feel your prayers, trust me on that and pray earnestly for her well being and healing. I pray God will bless her and keep his arms around her giving her the peace that he only and only he can give. She is not alone. Dawn-

• ▶ Reply

Permalink Reply by Liesa on January 5, 2010 at 11:27am

How is she doing today? Everyday is painfully slow, I know. Look for a little blessing today...maybe she will give you one of her old smiles. Also, it took a couple of episodes with my daughters speech impaired before we thought to have her write down what she was trying to say... it gave her some relieve from her frustration that at least we could understand her. Maybe even using pointing or picture drawing. What part of her brain is the AVM in? My daughters was the left front lobe which is part of the speech center.

Dawn said:

Hi Ruth,

I will pray for little granddaughter. She must be so frightened and confused right now. The following was sent to me in an email from a lady at my church who prayed with me prior to my having gamma knife treatment, maybe this can provide strength to you and your loved ones as well:

Here are a few things out of the book Fear Fighters:

"When God has asked me to do something that seems impossible for me, I have to preach to myself to defeat the fear and uncertainty that try to control me. I have to preach these three things to myself. They have become myfear fighters. I encourage you to make these declarations over your; situation.
*1. Jesus is with me and He has all power.*
Matt 28:18-20 "Lo, I am with you always, even to the end of the
age." So, when you need to step out in faith for whatever challenge you
face, preach to yourself, "Jesus is with me, and He has all Power!" Don't
back up. Don't you tremble. Don't be afraid! Fear not! I have all
power! Remember be like the 3 Hebrew boys in the fiery furnace...when
Nebuchadnezzar looked in and saw 4 men, the fourth was the Son of God. Dan
3:24-25
Remember God Has All Power over your situation.... your situation doesn't
have power over you!!!

*2. God is at the bottom.*
* * No matter how low the trials of life take me, God is at the bottom.
When I feel I have hit rock bottom and that the challenges are too great to
overcome, God is there. Moses was talking about how mighty and what
miracles God did on the mountain top, but that God is with people not only
when things are going right. Deut. 33:27 "The eternal God is your refuge,
and underneath (bottom) are the everlasting arms" also translated..God's
arms are underneath you at the bottom. No matter how deep the valley you
have to walk, God's presence is deeper. Look for God at the bottom of your
situation.

*3. God has given to everyone a measure of faith. God has dealt to each one a measure of faith Rom 12:3 There is; nothing that god will require of me for which I don't have the faith. He
has given me the measure of faith I need to please Him. So whatever the; challenge I am facing, I preach to myself, I have the faith for this! Jesus was saying to Simon Peter "When Satan is attacking you, the most; important prayer that I can pray for you is that your faith will stand
through this process you are going through...that your faith will not fail! It just takes faith the size of a mustard seed to start your faith to grow

*Dear heavenly Father,*
*I come to You to declare the truth that Jesus is with me, and He has all
power. I declare that You are the God at the bottom when I feel like life
is over and I cannot go on. I choose to believer that I have faith for
this....that You have given me a measure of faith to become an effective
fear fighter ---- and win! I submit my life completely to Your lordship Jesus. I choose to face off with my fears and learn to use Your supernatural fear fighters to live a life of victory over all fear. In Jesus Name, Amen.*
> **
> *2 Tim 1:7 " For God has not given us a spirit of fear, but of power and of
> love and of a sound mind."*
> **
Your grandaughter will feel your prayers, trust me on that and pray earnestly for her well being and healing. I pray God will bless her and keep his arms around her giving her the peace that he only and only he can give. She is not alone. Dawn-

• ▶ Reply

Permalink Reply by Ruth Pepperman on January 5, 2010 at 3:30pm

Hi Ben. I haven't joined this group because I'm not a parent of AVM. I'm the grandmother! My daughter is in the hospital all the time with my granddaughter so I was delegated to join the AVM Survivors Group!!

Ben Munoz said:

Ruth, are you part of the parents of AVM group yet: http://www.avmsurvivors.org/group/parentsofavm

• ▶ Reply

ModeratorPermalink Reply by Ben Munoz on January 5, 2010 at 3:48pm

That's close enough. Parents/Grandparents of AVM...:)

Ruth Pepperman said:

Hi Ben. I haven't joined this group because I'm not a parent of AVM. I'm the grandmother! My daughter is in the hospital all the time with my granddaughter so I was delegated to join the AVM Survivors Group!!

Ben Munoz said:

Ruth, are you part of the parents of AVM group yet: http://www.avmsurvivors.org/group/parentsofavm

• ▶ Reply

Permalink Reply by Ruth Pepperman on January 5, 2010 at 3:51pm

Thank you Dawn for your good wishes and your prayers. We are religious Jews and thus very connected with G-d - although not with Jesus. We have utmost faith that however hard the tests we are given, they are for the best and a part of G-d's plan. We are praying all the time that Tal will have a complete recovery and we thank everyone on this list and throughout the world who is praying for Tal. She is definitely frightened but we are trying to reassure her. We see tiny improvements but we still have a long, long way to go.

Dawn said:

Hi Ruth,

I will pray for little granddaughter. She must be so frightened and confused right now. The following was sent to me in an email from a lady at my church who prayed with me prior to my having gamma knife treatment, maybe this can provide strength to you and your loved ones as well:

Here are a few things out of the book Fear Fighters:

"When God has asked me to do something that seems impossible for me, I have to preach to myself to defeat the fear and uncertainty that try to control me. I have to preach these three things to myself. They have become myfear fighters. I encourage you to make these declarations over your; situation.
*1. Jesus is with me and He has all power.*
Matt 28:18-20 "Lo, I am with you always, even to the end of the
age." So, when you need to step out in faith for whatever challenge you
face, preach to yourself, "Jesus is with me, and He has all Power!" Don't
back up. Don't you tremble. Don't be afraid! Fear not! I have all
power! Remember be like the 3 Hebrew boys in the fiery furnace...when
Nebuchadnezzar looked in and saw 4 men, the fourth was the Son of God. Dan
3:24-25
Remember God Has All Power over your situation.... your situation doesn't
have power over you!!!

*2. God is at the bottom.*
* * No matter how low the trials of life take me, God is at the bottom.
When I feel I have hit rock bottom and that the challenges are too great to
overcome, God is there. Moses was talking about how mighty and what
miracles God did on the mountain top, but that God is with people not only
when things are going right. Deut. 33:27 "The eternal God is your refuge,
and underneath (bottom) are the everlasting arms" also translated..God's
arms are underneath you at the bottom. No matter how deep the valley you
have to walk, God's presence is deeper. Look for God at the bottom of your
situation.

*3. God has given to everyone a measure of faith. God has dealt to each one a measure of faith Rom 12:3 There is; nothing that god will require of me for which I don't have the faith. He
has given me the measure of faith I need to please Him. So whatever the; challenge I am facing, I preach to myself, I have the faith for this! Jesus was saying to Simon Peter "When Satan is attacking you, the most; important prayer that I can pray for you is that your faith will stand
through this process you are going through...that your faith will not fail! It just takes faith the size of a mustard seed to start your faith to grow

*Dear heavenly Father,*
*I come to You to declare the truth that Jesus is with me, and He has all
power. I declare that You are the God at the bottom when I feel like life
is over and I cannot go on. I choose to believer that I have faith for
this....that You have given me a measure of faith to become an effective
fear fighter ---- and win! I submit my life completely to Your lordship Jesus. I choose to face off with my fears and learn to use Your supernatural fear fighters to live a life of victory over all fear. In Jesus Name, Amen.*
> **
> *2 Tim 1:7 " For God has not given us a spirit of fear, but of power and of
> love and of a sound mind."*
> **
Your grandaughter will feel your prayers, trust me on that and pray earnestly for her well being and healing. I pray God will bless her and keep his arms around her giving her the peace that he only and only he can give. She is not alone. Dawn-

• ▶ Reply

Permalink Reply by Janice Brown (Andrew's Mom) on January 5, 2010 at 6:40pm

The main thing I was told is that for children, if surgery is an option, that is the way to go. Research, research, research for the best doctor who performs specifically vascular brain malformation surgeries. Never give up hope, as bad as it seems, the brain and body are amazing with her age recovery maybe long, but very promising.

• ▶ Reply

Permalink Reply by Liesa on January 5, 2010 at 9:55pm

ours was Dr Klopenstein in Peoria, IL HE WAS ABSOLUTELY FABULOUS.

Janice Brown (Andrew's Mom) said:

The main thing I was told is that for children, if surgery is an option, that is the way to go. Research, research, research for the best doctor who performs specifically vascular brain malformation surgeries. Never give up hope, as bad as it seems, the brain and body are amazing with her age recovery maybe long, but very promising.

• ▶ Reply

Permalink Reply by Ruth Pepperman on January 6, 2010 at 1:43am

Thanks Janice. I'm thinking that they'll probably go for surgery but we're not sure at the moment. We have excellent neuro-surgeons at the Hadassah Hospital in Jerusalem. At the moment, however, we're getting through the trauma of Tal having been taken off sedation and trying to get her speech back to normal. It's a long journey. Baby steps!

Janice Brown (Andrew's Mom) said:

The main thing I was told is that for children, if surgery is an option, that is the way to go. Research, research, research for the best doctor who performs specifically vascular brain malformation surgeries. Never give up hope, as bad as it seems, the brain and body are amazing with her age recovery maybe long, but very promising.

• ▶ Reply

Permalink Reply by Marla Post on January 7, 2010 at 5:41am

Dear Ruth,
My son was 12 when he had his AVM bleed. We endured many of the same things you have been going though with your granddaughter. My son had issues with speech and swallowing when he first woke up. He also had problems with recalling words. Like many others have mentioned here children can be amazing healers. Youth is on their side. I know how hard it is to wait to see these little improvements. Hang in there. I'll be praying everything continues to improve. If you need us we are all right at your fingertips.
Take Care,
Marla

• ▶ Reply

Permalink Reply by Ruth Pepperman on January 7, 2010 at 11:23am

Hi Marla,

Thank G-d Tal is now much more clear with her speech. She's not saying too much but when she does speak it's clear. At the moment she's fighting sleep. I think that she's perhaps afraid to go to sleep and just dozes off for about 20 minutes at a time. We make sure that there's a member of the family or close friend with her at all times. She's due for an MRI on Sunday so we'll see what happens.

Thanks so much for your reply,

Ruth

Marla Post said:

Dear Ruth,
My son was 12 when he had his AVM bleed. We endured many of the same things you have been going though with your granddaughter. My son had issues with speech and swallowing when he first woke up. He also had problems with recalling words. Like many others have mentioned here children can be amazing healers. Youth is on their side. I know how hard it is to wait to see these little improvements. Hang in there. I'll be praying everything continues to improve. If you need us we are all right at your fingertips.
Take Care,
Marla

• ▶ Reply

Permalink Reply by Liesa on January 7, 2010 at 1:13pm

Yay! After the fact my daughter told me that she really felt comfort that there was always someone there with her day and night. Despite my ego, dad and grandpa and even her cousin were satisfactory. JUST SOME family member gave her the love and comfort she needed. You are doing the right thing!

Ruth Pepperman said:

Hi Marla,

Thank G-d Tal is now much more clear with her speech. She's not saying too much but when she does speak it's clear. At the moment she's fighting sleep. I think that she's perhaps afraid to go to sleep and just dozes off for about 20 minutes at a time. We make sure that there's a member of the family or close friend with her at all times. She's due for an MRI on Sunday so we'll see what happens.

Thanks so much for your reply,

Ruth

Marla Post said:

Dear Ruth,
My son was 12 when he had his AVM bleed. We endured many of the same things you have been going though with your granddaughter. My son had issues with speech and swallowing when he first woke up. He also had problems with recalling words. Like many others have mentioned here children can be amazing healers. Youth is on their side. I know how hard it is to wait to see these little improvements. Hang in there. I'll be praying everything continues to improve. If you need us we are all right at your fingertips.
Take Care,
Marla

• ▶ Reply

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