We are AVM survivors, here for your support.
Craniotomy on Monday!!
Replies to This Discussion
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Permalink Reply by Anabel Meza on -
Have faith my friend!!!
WIsh you the best, you baby and you will be on my prayers!!!
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Permalink Reply by Erin Kamery on -
It must feel great to hear AVM free. I hope she feels better soon
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Permalink Reply by RobinsonClan2011 on -
Our prayers are with you!!! Hope all goes well!
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ModeratorPermalink Reply by Ninibeth Ramirez on -
love good news and this is a fantastic one... I have always said that prayers are powerful... I will pray for a fast recovery...
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Permalink Reply by Cynthia Schaeffer(Grace's Nana) on
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Such wonderful news Tawnya! Prayers continue your way for your daughter! - Cindy
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Permalink Reply by DeAndra on -
Congrats. That is great to hear. She made it through the extremely hard part, and she will make it through this great too I am sure. So glad for her, you, and the rest of your family.
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ModeratorPermalink Reply by Suzy E on -
Wow... AVM free...She's over a huge hump and the rest is recovery. It's wonderful to hear that the surgery was successful. Thank you for that update. Focus on the success, take things one step at a time and stay strong (and lean here if you ever don't feel that way). Your girl is very lucky to have you on her side. All the best. :)
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Permalink Reply by Angela on -
AVM free is fantastic news! I will continue to pray for her and hopefully they can find some meds that wont make her sick.
God Bless you and your family
Angela
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ModeratorPermalink Reply by Louisa on -
Hi Tawnya...You have been in my thoughts and prayers. How is your daughter doing since Monday's craniotomy?
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Permalink Reply by Jennifer on -
So good to hear the wonderfully news! Hope all goes well with her recovery
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Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
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Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
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Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
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Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
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Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
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May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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