We are AVM survivors, here for your support.
Craniotomy on Monday!!
Replies to This Discussion
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Permalink Reply by Erin Kamery on -
I hope all goes well. i will be praying.
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ModeratorPermalink Reply by Louisa on -
She certainly with be in my thoughts & prayers....Please let us know how she's doing! Stay Strong and positive, Mom!
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Permalink Reply by sharyn l on -
I will send prqayers for your girl and your entire family. blessings! Sharyn
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Permalink Reply by Angela on -
We will all be praying for her and you and your family! Sending positive thoughts and hugs!
Angela
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Permalink Reply by DeAndra on -
I do not know your situation, but I will pray all the same. Good luck and I pray everything turns out for the best.
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Permalink Reply by Tawnya Sherbondy on -
Thank you all soo much! This is very scary, but I realize it's necessary. I appreciate the prayers and well wishes :)
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Permalink Reply by Lisa on -
Sending many healing prayers for your girl and you. Love to you all. God Bless and good Luck!Keep us posted
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Permalink Reply by Manux on -
My prayers and thoughts will be with all of u, she will be fine. Please take care...XXXXXX
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ModeratorPermalink Reply by Ninibeth Ramirez on -
Put your confidence in God!!!! I send you positive thoughts.. Try to be calm... I am praying that you could have a perfect surgery and a fast recovery :-)
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Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
MRI or angio?
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
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Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
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Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
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May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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