Replies to This Discussion

ModeratorPermalink Reply by Ron, Kansas on January 22, 2011 at 12:01am

Welcome to the site Catherine.

 

I know several members have AVMs in extremities.  Hopefully some of them will post.  You might also type "leg" in the search block at the upper right of this screen.  That should take you to those posted about leg AVMs.

 

Hope this helps.

Ron, KSSS

• ▶ Reply

Permalink Reply by Catherine D'Angelo on January 22, 2011 at 12:10am

Thanks a bunch.  :)  will do.  ~Catherine

Ron, KS said:

Welcome to the site Catherine.

 

I know several members have AVMs in extremities.  Hopefully some of them will post.  You might also type "leg" in the search block at the upper right of this screen.  That should take you to those posted about leg AVMs.

 

Hope this helps.

Ron, KSSS

• ▶ Reply

ModeratorPermalink Reply by Barbara H. on January 22, 2011 at 12:22am

Hi Catharine. Please go to the main page...scroll down to the lower right side...join the group...

extremityavms. Bet you find someone there who has the same problem. Good Luck!

• ▶ Reply

Permalink Reply by chevans on February 9, 2012 at 7:53pm

Hi Catherine,
I have AVMs in my left leg only. Mine went a very long time before getting diagnosed. I actually had 2 orthopedic knee surgeries before they detected my AVMs. I had 3 in the back of my knee in an area called the popliteal space. All of my symptoms pointed to an orthopedic issue (thus the prior surgeries). I had mine surgically removed back last April. Since then, the pain has gone away, but I still get a feeling if pressure in my calf after sitting or standing or riding in a car/plane for too long.

I did not notice that mine were associate with hormonal changes, but from what I hear, every case is different. I hope that's helpful. If for nothing else, but to let you know that you're not alone out there!

Chappell

• ▶ Reply

ModeratorPermalink Reply by Trish on February 10, 2012 at 2:34pm

Catherine. The only one I know of off the top of my head is Carter. His mom (Pamela) has a page here: http://www.avmsurvivors.org/profile/Pamelatrudeau?xg_source=profile.... Also, here is the link to the extremity AVM group: http://www.avmsurvivors.org/group/extremityavms. I know there are others with AVMs in the leg but I can't recall them off the top of my head at the moment. Good luck.

• ▶ Reply

Permalink Reply by Deb C. on February 11, 2012 at 3:11pm

Hi Catherine,

I know that there are several people in Extremity AVM's who have AVMs in their legs. Everyone would be very happy for you to join our group in case you haven't already.

Take care,
Debbie

• ▶ Reply

ModeratorPermalink Reply by Suzy E on February 11, 2012 at 5:54pm

Wow you posted this a little more than a year ago but welcome anyway! I didn't have my AVM in my leg, but did have brain surgery. Looks like you got some great advice and everyone pointed out the extremities group. Hope you joined or will join, hang in there and welcome! (ok it's a little late but still...) :)

• ▶ Reply