Replies to This Discussion

Permalink Reply by Lizzie's Dad on May 31, 2010 at 11:12am

We had a great time Daniel...thanks to you and Crystal for your hospitality. Our only regret is that we with we had gotten there a little earlier so we could have spent time with a few of the others.

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ModeratorPermalink Reply by Ben Munoz on June 2, 2010 at 6:41pm

Thanks for hosting us, Daniel and Crystal!

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Permalink Reply by Daniel A Sadler on June 3, 2010 at 2:40am

See every one next year?

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Permalink Reply by James Larken Smith on June 3, 2010 at 8:21am

And Daniel a great organizer, over-comer, and one who gives totally of himself:) And his house comes with cages and sound effects! You had to be there to understand!

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Permalink Reply by Kati Strong on June 5, 2010 at 2:16am

You and Crystal are the best! I'm just sorry y'all live in Houston when we are all the way up here in Austin. But we are going to host an Austin Party (ummm, Don, Lizzie and I decided we're gonna have a party...sorry you have to learn about here...) some time this summer, so some of y'all Houstonites are just going to have to make your way up here to the Hill Country. :-)

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Permalink Reply by Daniel A Sadler on June 5, 2010 at 5:07pm

O we like the hills.

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Permalink Reply by candice loerch on June 9, 2010 at 11:55pm

I just joined this website, my mother has and avm and is currently in treatment and she got home today after the first and last "glueing" procedure, she is going to be doing radiation and she is very emotional and just wishes she had somebody to talk to that has been through the same situations. I am glad to know that there is this website and will potentially lead her to answer some questions. Her name is Kellie, keep and eye out for her. : )

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Permalink Reply by Daniel A Sadler on June 10, 2010 at 2:46am

http://www.avmsurvivors.org/photo/albums/avm-party

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Permalink Reply by Debbie Joseph on June 15, 2010 at 8:44pm

I live in the Houston area and would love to meet up with some of you.
How did you get the word out?
I have a lung avm which I have not had embolized. long story, many consults, and I still haven't decided what direction to go.
thank you all; you are all such brave human beings. G-d bless you all.

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Permalink Reply by Kati Strong on June 15, 2010 at 8:58pm

Hi Debbie. I live in Austin, so it's not terribly near Houston, but my daughter (avm survivor), my husband and I all came down to Houston for an overnight so that we could attend the bbq at Daniel's house. We are going to be hosting a get together in early September and hope that you will be able to make it. I know there are a few Houstonians who have expressed interest in coming up for it.

Kati

Debbie Joseph said:

I live in the Houston area and would love to meet up with some of you.
How did you get the word out?
I have a lung avm which I have not had embolized. long story, many consults, and I still haven't decided what direction to go.
thank you all; you are all such brave human beings. G-d bless you all.

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ModeratorPermalink Reply by Suzy E on March 25, 2012 at 10:50am

I can not agree more about these people... (and thank you for the help Caryn between your camera and the nametags you were phenomenol). Sheree, James and Grace were not there (and you guys too) but it was an absolute honor to meet everybody. I think it worked out and everybody had a good time. Maybe next year will do it someplace neutral (like New Braunsfels), less expensive and less loud. And one big table?? Just a thought. But the folks at Hard Rock lost out. I can not wait for the BBQ in Houston (thank you Daniel n Crystal!) and to meet you Daniel, you are nothing but inspirational. I hope to learn a lot from you. ((((Daniel))))

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ModeratorPermalink Reply by Ben Munoz on March 25, 2012 at 12:58pm

Hi, Daniel, just got back from the San Antonio meetup. They had some clever ideas. I updated our post here: http://www.avmsurvivors.org/forum/topics/how-to-organize-a-meetup-in

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