We are AVM survivors, here for your support.
AVM's in Hosuton
I have meet some out standing people on Sat.(5/29/2010) all fellow AVM survivors.
Ben Munoz is a great person giving people a place to feel at home in their time of need. A man enjoying the journey of life at every turn.
Lizzie Strong the true hart of a champion!
Strong family the hart of a true family and they live up to the family's last name.
Sheree in a place of learning and understanding. We are all here for you. What a great fun person, full of life.
James Larke a man of inspiration and an over comer of all challenges that life has. An open hart.
Grace woman of out standing class and a strong sole.
Enrique man of strength and calm soul
Rebeca warm and caring
Gonzalez family a group of loving people
Caryn Just a totally joyful person and a load of fun!
Juli a warrior with a hart of gold and an accent to die for.
Crystal my wife a sole mate, deep hart, passion for others that is hard to find. True in spirit. Deep in faith. kind to all with a hart for others in need,
Thank you to all the family member, fiends and loved ones that have help us with our AVM's
To the doctors that have put their lives and time into the work of understanding AVM's
I feel like I have left some one out and if I did I'm sorry.
This was the first time we met in Houston and it will not be the last. See you next year!
Ben Munoz is a great person giving people a place to feel at home in their time of need. A man enjoying the journey of life at every turn.
Lizzie Strong the true hart of a champion!
Strong family the hart of a true family and they live up to the family's last name.
Sheree in a place of learning and understanding. We are all here for you. What a great fun person, full of life.
James Larke a man of inspiration and an over comer of all challenges that life has. An open hart.
Grace woman of out standing class and a strong sole.
Enrique man of strength and calm soul
Rebeca warm and caring
Gonzalez family a group of loving people
Caryn Just a totally joyful person and a load of fun!
Juli a warrior with a hart of gold and an accent to die for.
Crystal my wife a sole mate, deep hart, passion for others that is hard to find. True in spirit. Deep in faith. kind to all with a hart for others in need,
Thank you to all the family member, fiends and loved ones that have help us with our AVM's
To the doctors that have put their lives and time into the work of understanding AVM's
I feel like I have left some one out and if I did I'm sorry.
This was the first time we met in Houston and it will not be the last. See you next year!
Views: 3
Replies to This Discussion
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Permalink Reply by Lizzie's Dad on -
We had a great time Daniel...thanks to you and Crystal for your hospitality. Our only regret is that we with we had gotten there a little earlier so we could have spent time with a few of the others.
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Permalink Reply by Daniel A Sadler on -
See every one next year?
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Permalink Reply by James Larken Smith on -
And Daniel a great organizer, over-comer, and one who gives totally of himself:) And his house comes with cages and sound effects! You had to be there to understand!
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Permalink Reply by Kati Strong on -
You and Crystal are the best! I'm just sorry y'all live in Houston when we are all the way up here in Austin. But we are going to host an Austin Party (ummm, Don, Lizzie and I decided we're gonna have a party...sorry you have to learn about here...) some time this summer, so some of y'all Houstonites are just going to have to make your way up here to the Hill Country. :-)
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Permalink Reply by Daniel A Sadler on
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O we like the hills.
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Permalink Reply by candice loerch on -
I just joined this website, my mother has and avm and is currently in treatment and she got home today after the first and last "glueing" procedure, she is going to be doing radiation and she is very emotional and just wishes she had somebody to talk to that has been through the same situations. I am glad to know that there is this website and will potentially lead her to answer some questions. Her name is Kellie, keep and eye out for her. : )
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Permalink Reply by Daniel A Sadler on
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Permalink Reply by Debbie Joseph on
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I live in the Houston area and would love to meet up with some of you.
How did you get the word out?
I have a lung avm which I have not had embolized. long story, many consults, and I still haven't decided what direction to go.
thank you all; you are all such brave human beings. G-d bless you all.
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Permalink Reply by Kati Strong on
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Hi Debbie. I live in Austin, so it's not terribly near Houston, but my daughter (avm survivor), my husband and I all came down to Houston for an overnight so that we could attend the bbq at Daniel's house. We are going to be hosting a get together in early September and hope that you will be able to make it. I know there are a few Houstonians who have expressed interest in coming up for it.
Kati
Debbie Joseph said:I live in the Houston area and would love to meet up with some of you.
How did you get the word out?
I have a lung avm which I have not had embolized. long story, many consults, and I still haven't decided what direction to go.
thank you all; you are all such brave human beings. G-d bless you all.
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