We are AVM survivors, here for your support.
AVM Walk T-shirts and Fundraising!
Drum roll please.....
We are very excited for this years fundraiser and it is finally LIVE!
http://www.indiegogo.com/AVMSurvivors
Please visit our fundraising site and donate to receive your Tshirts, AVM Survivor edition Brainbows and Lion Snaps, pretty butterfly charms, Super cool AVM Art work, and so much more.
And really, you can EVEN "win" dinner with Ben!!! Who can resist that?
Please spread the word with your friends and family and help us have an awesome fundraiser this year. Our goal is $10,000. That's right TEN THOUSAND dollars.
And this is has a double benefit. We will be splitting all funds 80/20 to TAAF and to Ben's Friends. So your donation not only helps TAAF in their ongoing mission of being "Dedicated to bettering the lives, support networks, and medical care of those affected by aneurysm and other types of vascular malformation of the brain." But it also helps to support THIS group and all of the 24 networks and nearly 7500 members of the Ben's Friends Communities. Awesome right? How can you say no to support all of this super coolness?
We couldn't be more excited and hope you all are as well!
Shalon
Replies to This Discussion
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Permalink Reply by Nikolaos Papadopoulos on -
Should do also long-sleeves? Why not?
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Blog Posts
Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
MRI or angio?
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
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Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
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Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
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May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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