AVM FREE!!!

I am now AVM Free!!!!!!!! Very blessed!!!!!!! Went in Aug 22 for Embolization! Then was 2nd case Aug 23 for REMOVAL! I was wide awake after with most of my vision loss in right eye gone. Woke up the next morning with most of my vision back! Was expected to be in ICU 2 days after removal I was in for one night. Was expected to be in reg room for a week was in for 2 1/2 days. I DO NOT have to have ANY therapy. The Emory Hospital in Atlanta and staff is AMAZING! Dr. Barrows team along woth Dr. Colley (spelling?) are life savers

Tags: Barrow, Emory

Views: 747

▶ Reply to This

Replies to This Discussion


ModeratorPermalink Reply by Barbara H. on September 8, 2011 at 5:10pm
Super hurrah!!! This is fantastic news!!!
Permalink Reply by Mrs. Dodson on September 8, 2011 at 5:13pm
Might I add I also shaved off my LONG brown hair the night before I went in and it was like releasing stress. Highly recommend it :)
Permalink Reply by Tawnya Sherbondy on December 1, 2011 at 3:35pm
I am struggling with what to for my 10 year old with LONG blond hair before her craniotomy! So happy to hear you are doing well :)

ModeratorPermalink Reply by Barbara H. on September 8, 2011 at 7:04pm
Woo hoo...I love the word obliterated! We have a sub-group here called Success Stories ...
http://www.avmsurvivors.org/group/s
I think you should join it!
Permalink Reply by Michele_A on September 8, 2011 at 7:13pm
I just LOVE hearing this and am so very happy for you!!! Another AVM gone - bye bye :)))!!!!

/Michele

ModeratorPermalink Reply by Trish on September 8, 2011 at 7:28pm
Congratulations! So very happy for you!
Permalink Reply by A Collins on September 8, 2011 at 8:51pm
Now that is exciting news! Congratulations on such a successful procedure.
Permalink Reply by Kathy (Jacob's Mom) on September 9, 2011 at 1:58pm
What exciting news!!! So happy for you!
Permalink Reply by Gül Coşkun on September 9, 2011 at 4:26pm
Congratulations! Happy for you :)

ModeratorPermalink Reply by Louisa on September 9, 2011 at 5:21pm
Congratulations, Mrs. Dodson! Isn't it a great feeling??? I'm so happy for you! Yehhhhhhh!
Permalink Reply by Kathryn on September 9, 2011 at 8:17pm
Yeah! I am so happy for you!
Permalink Reply by Deb C. on September 9, 2011 at 9:09pm
Woo hoo!

Take care,
Debbie

RSS

Follow AVMSurvivors and Ben's Friends

Follow Me on Pinterest

To Support AVMSurvivors.org, Click an Ad. Or Two.

Advertise With Us

Powered by BensFriends.org

This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.

Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases

Photos

Loading…
  • Add Photos
  • View All

Blog Posts

Counting Down The Days...

Posted by Sam on May 27, 2012 at 3:30pm 0 Comments

I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.

Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…

Continue

What up with my ear???

Posted by kristi on May 26, 2012 at 3:17pm 3 Comments

I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)

My bruit was my connection to my heart, so I always thought (when I never…

Continue

MRI or angio?

Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments

Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…

Continue

Stage one complete

Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments

Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.

We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…

Continue

Thank you

Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments

I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…

Continue

Moderator

May 2012 AVMSurvivors Community Newsletter

Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments

Dear Friends and Family of AVMSurvivors,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…

Continue

10 days post surgery for my brother

Posted by DsSis on May 25, 2012 at 12:37am 5 Comments

David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.

1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…

Continue

"Executive Function Disorder"

Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments

I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…

Continue

Events

© 2012   Created by BensFriends.org

Badges  |  Report an Issue  |  Terms of Service