Replies to This Discussion

ModeratorPermalink Reply by Shalon on January 9, 2009 at 2:36pm

I'm in! And I'm looking at potentially getting a discount room rate at one of the nearby hotels if there are enough people who are going to come in for the event.

I will also volunteer to make us all matching T-shirts so that we can represent AVMSurvivors.org! I'm thinking Navy blue shirts with the AVMSurvivors.org adrs & green butterfly on the front, and then something on the back stating your reason to walk. Like-

I'm a fighter
I'm a survivor
I suppport Joe Schmoe

Or whatever, totally open to suggestions.

I really hope that there is a large group who will be able to attend. It would be awesome for some of us to come together!

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ModeratorPermalink Reply by Ben Munoz on January 9, 2009 at 4:32pm

I can personalize our logo to say:

A V M
Survivors
I support <Joe Schmoe>, or whatever

for anyone who wants to make their own T-shirt on Cafe Press.

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ModeratorPermalink Reply by Kim (Jaclyn's mom) on January 9, 2009 at 8:06pm

Shalon/Lianne ! I AM SOOOO EXCITED !!! The T SHIRTS are PERFECT ! Shalon, will you be staying at the hotel too or driving ? I am still working on it ...but it's lookin' pretty good for us ! Just have to juggle some other things going on this summer to be able to do this ..... TALK SOON! LOVE YA !

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ModeratorPermalink Reply by Shalon on January 10, 2009 at 9:55pm

I'll stay in the city too. I'm sure the walk starts early and I want to already be there! Plus I imagine we HAVE to have a get together the day before, right?

Let me work on the hotel thing a little in the next few days. I have a few hook ups that I may be able to get some group thing going. Now that I'm back home I can look into it. So I'll get back to everyone on this.

I'm also recruiting people to walk with us. I really hope that we can get a good group going. Ben has already volunteered his friend Scott. I'll make sure he gets the shirt saying "I support Ben the Great!"

ha ha ha! I don't think Scott really knew what he was getting into when he signed up for this group! Oh well, too late now!

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ModeratorPermalink Reply by Ben Munoz on January 11, 2009 at 9:08am

Very funny. Scott will love it.

Shalon said:

I'll stay in the city too. I'm sure the walk starts early and I want to already be there! Plus I imagine we HAVE to have a get together the day before, right?

Let me work on the hotel thing a little in the next few days. I have a few hook ups that I may be able to get some group thing going. Now that I'm back home I can look into it. So I'll get back to everyone on this.

I'm also recruiting people to walk with us. I really hope that we can get a good group going. Ben has already volunteered his friend Scott. I'll make sure he gets the shirt saying "I support Ben the Great!"

ha ha ha! I don't think Scott really knew what he was getting into when he signed up for this group! Oh well, too late now!

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Permalink Reply by Brian on January 11, 2009 at 7:21pm

Thanks for putting this up! I had no idea this occurred. Another good reason to visit San Fran.

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Permalink Reply by Brian on January 11, 2009 at 7:24pm

Do you know the exact date?

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ModeratorPermalink Reply by Kim (Jaclyn's mom) on January 11, 2009 at 7:36pm

Yes, May 3rd .. :0)

Brian said:

Do you know the exact date?

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Permalink Reply by Chris on January 12, 2009 at 4:51am

what a great wonderful idea. Matt's in, but finances are difficult for us, especially as we are in the uk. will do some research and confirm. how exciting !!! : ) xx

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Permalink Reply by Chris on January 12, 2009 at 8:18am

just an update. matt will be there !! we are going to organise a sponsored walk to raise the money for him to come out. he really wants to meet everyone and give help, support etc etc. watch this space.

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ModeratorPermalink Reply by Kim (Jaclyn's mom) on January 12, 2009 at 9:22am

Hi Christine ! I AM SOO EXCITED !


Christine Ransley said:

just an update. matt will be there !! we are going to organise a sponsored walk to raise the money for him to come out. he really wants to meet everyone and give help, support etc etc. watch this space.

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Permalink Reply by Kat on January 13, 2009 at 8:03pm

My husband had his AVM removed by a crainitomy almost 2 years ago (on Feb 2) at UCSF. I am a native of San Franciso and also give private tours of the City. If anyone on the this board has never spent much time in SF and would like to spend a day touring around, let me know. My car only fits 3 people, but maybe we can get a van and fit more. This is not meant to be a solicitation, rather a free offer if you have the time while you are here. Alternatively, if you are NOT interested in a tour, but just need information about things to do, let me know. I love to talk about it. I did not know about this site 2 years ago and wish I had, it would have been so helpful to me. I remember how alone I felt. My husband's english is not all that good, otherwise he would be the one writing on this board, not me!

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