We're AVM Survivors, Here For Your Support...

Anyone with spinal cord AVM?

My AVM was in my spinal cord, T-1, T-2. It was obliterated with embolization. Still have an aneurysm that was embolized at the same time.

Anyone else here with a spinal cord AVM?

Permalink Reply by Gordon D on February 18, 2010 at 11:07am: Tori
Welcome to the site ! try this
http://www.avmsurvivors.org/profiles/members/search?name=&count...; ▶ Reply to This

Permalink Reply by Tori on February 18, 2010 at 1:35pm: Thanks Gordon - and wow, thanks for that list too. :-); ▶ Reply to This

Permalink Reply by Jeramy Williams on February 18, 2010 at 8:22pm: I have a spinal avm c2 c3 c4 I have been fighting for about 12 years waiting for next angiogram to see how it is doing.; ▶ Reply to This

Permalink Reply by Tori on February 19, 2010 at 3:34pm: Jeramy - why is it taking so long to be able to get another angiogram?

Jeramy Williams said:
I have a spinal avm c2 c3 c4 I have been fighting for about 12 years waiting for next angiogram to see how it is doing.; ▶ Reply to This

Permalink Reply by Jeramy Williams on February 19, 2010 at 3:55pm: I have had several through the years and several surgeries and treatments just got to have another angio to check up on it

Tori said:
Jeramy - why is it taking so long to be able to get another angiogram? Jeramy Williams said:
I have a spinal avm c2 c3 c4 I have been fighting for about 12 years waiting for next angiogram to see how it is doing.; ▶ Reply to This

Permalink Reply by Ben Munoz on February 20, 2010 at 9:36pm: Thanks, Gordon, was just about to suggest that.; ▶ Reply to This

Permalink Reply by Linn N on March 13, 2010 at 10:19am: Hi Tori!
I have a spinal avm T12-13. It was 70 % obliterated with embolization in october and in a few days i'm going back for another embolization. Have you had more than one embo?; ▶ Reply to This

Permalink Reply by Tori on March 13, 2010 at 2:05pm: Hi Linn,

Just one embo, both the AVM and the aneurysm at the same time.

Hope they can get the other 30% of your remaining AVM this next time around for you.

Linn N said:
Hi Tori!
I have a spinal avm T12-13. It was 70 % obliterated with embolization in october and in a few days i'm going back for another embolization. Have you had more than one embo?; ▶ Reply to This

Permalink Reply by Dale L Wamsley Sr on June 4, 2010 at 10:01am: I would recommend anyone with a spinal AVM see an Interventional Radiologist and a Neurosurgeon and ask them if they can glue them closed. It worked for me and although it took two attempts with angiograms my symptoms were 98% releived and the chance of a bleed out is to great to not have them repaired. I would rather walk around with these headaches I ahev now than not be able to walk at all. My AVM was a result of an accident in the military in 1982 and grew from T-3 to C-3 and caused me to end up witha multitude of problems to the point I was walking with a cane and going down hill rapidly. The MAYO Clinic, Johns Hopkins and a lot of other clinics and hospitals are doing the procedures. My doctor was Creed Rucker here in Tucson az From Radiology Limited. HE is a wonder skilled docor.
Dale; ▶ Reply to This