I know it's been quite some time since I've posted. But I've been in the process of applying to graduate school, searching for a new job and dealing with this pesky AVM and all the doctor visits its requiring. But I wanted to update everyone that I'm doing very well and have moved past the initial being afraid of the unknown stage. 

 

I'm working with a great team of doctors (a neurologist, neurosurgeon, radiation oncologist and an interventional radiologist) who have determined that the best course of action is an angio and embo followed by gamma knife one month after the procedure. 

 

They told me that mine is on my rt. cerebellum and about 3.6 cms X 3.2 cms so after an embolization the chances for obliteration via gamma knife will be great. So glad I'm in the homestretch for treatment because its been a hectic last few months!

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Best of luck to you!

Keeping you in my thoughts and prayers

Di

Hey I just read your post, how did the procedure go? I am having radiosurgery next month, and I am kind of nervous.  I want to apply to grad school, but I don't know how I will manage with TBI.  I've been dealing with AVMs since 2000.
Hey. Where are you having all this done? Sounds like the same course I had exactly, except I've done it multiple times at this point.... became a nurse after all of this. Still dealing but it's been 10 years.  I've had 4 embolizations, 4 gamma knife radiations....
I know its pretty late but i hope your procedures were successful. I had a angiogram and embo as well.
Hey, congratulations man. glad you don't have to do too many embolizations, they can bwe a pain when you wake up. I just got out from my 3rd and my IR surgeon told me he's got it 98% obliterated with onyx :) and they may not have to do craniotamy but may be able to use gamma knife how I had originally wanted, so glad to hear that you get to go the less painful route aswelll. good luck with it all and hope things calm down a bit once everything is taken care of for you.
Hay good luck mate, just get rid of the thing and get on with life. I think in some ways I am better off, I had a crani 4 weeks ago, still in recovery stage but at least it is gone.

Stay strong and take care
DM
Glad you have a plan in place and you are feeling confident about the future.  The scary, unknown phase is bad but when you feel you're moving forward it helps a lot.  God bless.  Kim
prayin for a safe and speedy recovery.. May god be with you at your time of worry and pain..
i haven't had that done just yet....i'm still waiting on my appointment to see what they want to do...hope all goes well for you!
I was getting my undergrad degree when I did pretty much what you described (ango, embolisms, then gamma). That was in 2007/2008. This month I just had an angiogram. The AVM has be obliterated, so maybe this will give you hope. I know they are all diffrent but maybe this helps. Also in June I graduated grad school, so don't let the doctors talk you into take more time off, unless you feel it is best for you. You'll know better than them what you can do.

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