We are AVM survivors, here for your support.
Angiogram and Embo Tomorrow!
I know it's been quite some time since I've posted. But I've been in the process of applying to graduate school, searching for a new job and dealing with this pesky AVM and all the doctor visits its requiring. But I wanted to update everyone that I'm doing very well and have moved past the initial being afraid of the unknown stage.
I'm working with a great team of doctors (a neurologist, neurosurgeon, radiation oncologist and an interventional radiologist) who have determined that the best course of action is an angio and embo followed by gamma knife one month after the procedure.
They told me that mine is on my rt. cerebellum and about 3.6 cms X 3.2 cms so after an embolization the chances for obliteration via gamma knife will be great. So glad I'm in the homestretch for treatment because its been a hectic last few months!
Replies to This Discussion
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ModeratorPermalink Reply by Barbara H. on -
Oh Michael...what a day you have planned! I will be praying for you! Please keep us informed!!!!
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Permalink Reply by MIchael Cornell on -
I'm just hoping that I can make it out in time to have some burgers!!!
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ModeratorPermalink Reply by Barbara H. on -
I like how you think...LOL!
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Permalink Reply by Deborah on -
Good luck Michael... will keep you in my prayers. I go for angiogram in June and then will hear of treatment plan.
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Permalink Reply by Tina White on
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Good luck, Michael. You have made it through the hard part -- waiting and worrying. Now it's time to obliterate that thing so you can get onto grad school. Keep us updated! We will be praying as well :-)
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Permalink Reply by Mare on
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Michael I will keep you in prayer...all will be well...you are courageous! Keep up uour spirits! mare
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ModeratorPermalink Reply by Louisa on -
Good luck Michael...Stay positive...so far you're doing an amazing job on this journey! Keep the Faith!
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Permalink Reply by Nay on -
i wish i had the strenght and faith like u do. I'm struggling but will manage some how. My avm is still not treated having a hard time deciding what route to go. Best of luck
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Permalink Reply by lauren myers, Ethans mum on -
Good Luck, I'm sure you'll be fine. xxx
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Permalink Reply by RoxAnne Parker on -
I hope all is well and my prayers are with you.
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Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
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Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
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Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
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Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
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May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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