Since i found out about my avm. On Feb 14th 2011 my avm was discovered..since then i feel like my life has been put on hold/ I've been depressed became overweight, cried, been angry, etcc...now that my surgery is coming up in about 5 weeks yikes i hope to change my life and start being happy. I was talking to a friend of mine about how i've been feeling. I can honsetly say i can't remember the last time i was just happy being myself. For the last 7 yrs of my life my priorities have been all over the place, from being with someone who isnt right for me, to not loving self for who i was and just damanging my body with all this extra weight....the last yr things got really ugly when i found out about my avm. I pray that i find the strenght to pick up and have a new chaper in my life. Once fully recovered..im hoping to move to another apartment in July, going back to the gym and really start living life. I'm 27 yrs old and i feel so lost....its time to stop feeling bad for myself and start loving myself more
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be strong...be positive...i know its very hard BUT you really need to look at things in that perspective...God bless
Permalink Reply by Paula on February 13, 2012 at 6:07am Hi Nay, keep your chin up, we are all survivors here, and things can only get better, as you say your young, so live, laugh and love, Positive thoughts are going out to you, stay strong and fight this avm with everything,I will be praying for you and everyone in this group,that things get better,xxx
Permalink Reply by Kim R on February 13, 2012 at 10:30am Anniversary" dates are always hard and I totally understand how you feel the AVM has taken over your life. What helped me was to re-phrase that feeling/thought. I decided to look at it from the perspective of a battle I was in and I was a warrior fighting against an AVM that was trying to destroy my life. And when I got treatment it was me fighting back against an enemy and I was going to be the winner and the AVM was going to be the loser. An AVM does change your life and the life you have post_AVM treatment will not be the same life you had before you were diagnosed but life is always about starting over and it's not easy but you can do it and have a richer life.
Thank u everyone! Today is a better day...
Thanks for all ur love, support and prayers...love u all :)
Permalink Reply by marcylynn on February 14, 2012 at 7:24am I feel for you Nay & every day keep sending positive thoughts for you! I am excited for you to get through this surgery & start having new beginnings!! You're a strong girl & just keep believing-things will get better for you! This will all just be a dot in your long life ahead of you where you can look back and be that much stronger :) We're all here for you & yes love yourself too because you're stuck with yourself forever lol.
Permalink Reply by Anita Hopson on February 22, 2012 at 9:12pm
Permalink Reply by Anita Hopson on February 22, 2012 at 9:13pm This community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
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Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
ContinuePosted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
ContinuePosted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
ContinuePosted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
ContinuePosted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
ContinueOctober 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
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