Shalon's Discussions (271)

Discussions Replied To (248) Replies Latest Activity

"HI everyone. Most of the shirts were shipped in July and happily received. We ended…"

Shalon replied Aug 4, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

"Kimberly, I'm not sure what this is in regards to or what I said that you disagree w…"

Shalon replied May 31, 2011 to AVM doctors

10 May 31, 2011
Reply by Shalon

"Getting ready to Walk!!!  Had a great night last night at Pizza with a large group o…"

Shalon replied May 1, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

"This week seems like a great week for donations. And really, today is going pretty…"

Shalon replied Apr 29, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

"Just under $3000 so far!  Who's going to put us over that mark?!?!?  Come on someone…"

Shalon replied Apr 29, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

"Three new donations today! Yay! Total raised so far is now up to $2648! Keep it comi…"

Shalon replied Apr 28, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

"Update- $2610 raised!  Help us reach our $10,000 mark!  Donate here- http://www.indi…"

Shalon replied Apr 28, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

"  Update-  $2575 has been raised so far!  We are a quarter of the way to our goal of…"

Shalon replied Apr 27, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

"Get additional opinions.  Yes sometimes parts of your tongue will need to be removed…"

Shalon replied Apr 4, 2011 to Anyone have an Avm on their tongue

5 Sep 20, 2011
Reply by patricia

"Fundraiser update!   We are just $10 shy of $1200 on this beautiful Firday night!  G…"

Shalon replied Apr 1, 2011 to AVM Walk T-shirts and Fundraising!

73 Nov 24, 2011
Reply by Nikolaos Papadopoulos

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Blog Posts

confusion as symptoms mount... time for new dr?

Posted by mamaginof3 on May 9, 2013 at 3:13pm 14 Comments

Since last may, the symptoms that sent me to the neurologist in the first place are getting worse. July 11th, the MRI with Contrast found my avm, left frontal lobe. The neurologist I see right now is not concerned about the avm, and only wants to… Continue

HHT Diagnosis or Suspected

Posted by Fish on May 10, 2013 at 3:25pm 1 Comment

My husband has HHT . Daughter has been tested but no results yet. Praying God spares my children. I have two granddaughters. I have another daughter who has not been tested. We found the HHT Center in Chapel Hill after years of nosebleeds. He has…

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Dreams... changing

Posted by Michael on May 2, 2013 at 3:14am 5 Comments

Hello there,

how it's for you? In my case, I have the paralysis since last october 2012. Before that I was very active with cross country running, dogsport, and so on. The good thing: In my dreams I had no Paralysis. I run in my dreams,…

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One year since my bleed, more or less

Posted by tdz103m on May 2, 2013 at 5:34am 5 Comments

I don't know exactly when it happened because I slept through May 1, 2012. All day.

May 2, I was able to move around a bit. May 3 a bit more but by May 4th I was feeling in the deepness of it and told my wife to dial 911 and it was into the…

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Ben's Friends Co-Founder Scott Orn Featured on Thoughtbot Podcast

Posted by Armando A. on April 21, 2013 at 8:00am 0 Comments

After being featured on a number of publications,…

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