We are AVM survivors, here for your support.
Symptoms & Treatment (104)
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 AVM FREE!!!I am now AVM Free!!!!!!!! Very blessed!!!!!!! Went in Aug 22 for Embolization! Then was 2nd case Aug 23 for REMOVAL! I was wide awake after… Started by Mrs. DodsonLatest Reply |
| Discussions | Replies | Latest Activity |
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 surgery through the neck?Has anyone here had to have their surgery at the very base of their head actually through their neck? If so, could you tell me about it? Th… Started by Ngawildflower |
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on Wednesday Reply by Ngawildflower |
 Preparation Recovery from CraniotomyDear wise and courageous survivors: My husband is scheduled to have a craniotomy this Friday with Dr. Spetzler for a complex dural AV Fistu… Started by Joy Goldman |
19 |
May 13 Reply by Joy Goldman |
 Effect of cutting hole in membrane surrounding brainMy understanding is that the cerebral spinal fluid (CSF) surrounding the brain provides protection, buoyancy, and chemical stability. The C… Started by pbgvdad |
0 | May 12 |
Internal spinal cord AVMIs there anybody out there with a interior spinal cord AVM If there is I would like to maybe chat about post op recovery. My AVM was 2.7 mm… Started by Doug.S |
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May 9 Reply by Doug.S |
 Forgetting thingsHello everyone Since my embolization in august I noticed having problems with my memory, and since my treatment in january these problems i… Started by Melissa |
8 |
May 8 Reply by whispers |
 curious about how you all discovered your avmI started having a headache over a month ago. It progressed to wierd stroke like symptoms & pain in my head. Loss of vision & slurr… Started by Mariah |
25 |
May 8 Reply by lakersfan86 |
 Again about KeppraHi everyone, I have been reading about Keppra (anti-seizure meds) a lot recently since my husband is on it since he has had the stroke (due… Started by liepa3 |
9 |
May 3 Reply by liepa3 |
Frustrated with no answersHi everybody! I just thought I'd ask your opinion. I had my angiogram almost 2 weeks ago. the NS said I have a very strange looking DAVF. H… Started by Ngawildflower |
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May 2 Reply by Barbara H. |
 what happens in our body?It is sometimes unlucky that we cant know for certain the processes in our bodies:thats why we need CT or X Ray check up.For the patients w… Started by Willie |
4 |
Apr 30 Reply by Willie |
 Is anyone taking Maxalt?Is anyone taking Maxalt for headache prevention? I was taking it w/Keppra, but the docs changed the Keppra to Topomax due to obvious reason… Started by Zilly74 |
2 |
Apr 29 Reply by elly |
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Counting Down The Days...
Posted by Sam on May 27, 2012 at 3:30pm 0 Comments 0 Likes
I'm counting down the days!!! At the end of June 2012 i have to go to the hospital for another Angio.
Hope to hear good news, that the Embolization and 2 Gamma Knife treatments where succesfull and that after 7 years of fighting the AVM is…
What up with my ear???
Posted by kristi on May 26, 2012 at 3:17pm 3 Comments 0 Likes
I had a bruit when I had the AVM. It was there all my life. I guess everyone hears it at some point but as an "AVMer" mine was ALWAYS present. We became friends:)
My bruit was my connection to my heart, so I always thought (when I never…
MRI or angio?
Posted by stephanie on May 26, 2012 at 1:24pm 4 Comments 0 Likes
Click here to visit my latest blog post. If anyone could shed some light on the conclusiveness of MRI and angio, it would be great! The surgeon…
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Stage one complete
Posted by existentialmom on May 25, 2012 at 4:48pm 2 Comments 0 Likes
Merlin came through the first gamma knife well, and we are scheduling stage 2 in August. Her treatment time was 152 minutes! No side effects yet.
We are relieved, but holding our breath against the next 3 months, 6 months, 1 year, 3 years,…
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Thank you
Posted by Cat D on May 25, 2012 at 3:14pm 2 Comments 2 Likes
I only got accepted to this site yesterday and already I feel at home. I hope that this will be good for me and my mom who also was accepted yesterday. We both have been through a lot in the…
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May 2012 AVMSurvivors Community Newsletter
Posted by Ben Munoz on May 25, 2012 at 9:14am 0 Comments 2 Likes
Dear Friends and Family of AVMSurvivors,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…
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10 days post surgery for my brother
Posted by DsSis on May 25, 2012 at 12:37am 5 Comments 2 Likes
David's surgery was May 14th and today, May 24th, we had a series of wonderful things happen.
1) I finally got to see my brother walk (with the assistance of his wonderful physio) - he made two rounds of the hospital ward...I was the last…
"Executive Function Disorder"
Posted by Hiro on May 23, 2012 at 8:50pm 10 Comments 0 Likes
I had the neurologist appointment on Monday, and he diagnosed me with "Executive Dysfunction Syndrome" that he thinks stemmed from some sort of damage to my left frontal lobe during/after my surgery (that was where my 3 AVMs were), contributing…
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Coffee in Rockhampton
October 11, 2011 at 6pm to October 10, 2012 at 7pm – Some where with good Coffee
2 Comments 1 Like
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