AVM Survivors Network: Arteriovenous Malformation Support

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Ben Munoz

How to Organize a Meetup in Your City

There is an informal brunch in LA Saturday, July 24.  Since others have subsequently asked about meetups in their area, the moderators and…

Started by Ben MunozLatest Reply

Daniel A Sadler

AVM's in Hosuton

I have meet some out standing people on Sat.(5/29/2010) all fellow AVM survivors.  Ben Munoz is a great person giving people a place to fee…

Started by Daniel A SadlerLatest Reply

Kelly Nelsen

What were you doing in the minutes that led up to your AVM rupture?

My son, who's 9, was eating ice cream at the time of his bleed.  He and his father both get "ice cream headaches", and suddenly, he complai…

Started by Kelly NelsenLatest Reply

Discussions Replies Latest Activity
Beth

What do you think?

I just edited my profile to include the following comment which may not make me popular with many, but which I sincerely think needs to be…

Started by Beth

26 13 minutes ago
Reply by Beth
Brian

Advance Directives & Medical Power Of Attorney

Not to be morbid, but both of these topics seem to be relevant to us. Since many of us have bleeds that are unexpected, I think its critica…

Started by Brian

29 1 hour ago
Reply by Tori
Ben Munoz

How to Organize a Meetup in Your City

There is an informal brunch in LA Saturday, July 24.  Since others have subsequently asked about meetups in their area, the moderators and…

Started by Ben Munoz

1 2 hours ago
Reply by Tori
Toni Yeomans

Exhaustion...anybody cleared back to work feel like maybe it was too soon?

I had about 2 months of recovery after my craniotomy which was this past march, and returned back to work in the middle of may. I missed be…

Started by Toni Yeomans

11 8 hours ago
Reply by Beth
ashok rajamani

KING TUT

i just got back from king tut exhibit in nyc. his death remains a mystery, but it is interesting to note all of his organs were removed, ex…

Started by ashok rajamani

0 8 hours ago
Joseph Rizzo

nyc meeting

I would be more then happy to start something in New York

Started by Joseph Rizzo

15 10 hours ago
Reply by David
Krystal Gray

Exercise with a partially clipped brain aneurysm.

Can I work out? How much can I work out? Will the increase of blood flow to my brain cause my partially clipped aneurysm to burst? I want t…

Started by Krystal Gray

4 1 day ago
Reply by Warren
Kimberly Buehrer

Desperately need some help documenting what is the proper-normal protocol for a doctor treating an AVM

I have an AVM on L ear, scalp and salivary gland.  I saw a neuro-interventional radiologist at my state's university howpital who said he w…

Started by Kimberly Buehrer

11 1 day ago
Reply by Jessica Lyons
Mare

DIFFERENCE WITH COIL OR ONYX EMBO

I have had three onynx embos....this one is a coil....any diference? If you know please advise... Mare

Started by Mare

1 1 day ago
Reply by Janice Brown (Andrew's Mom)
Stephanie Parish

New here - Parent of Teenager with VM in arm

I found this site thru Google and I hope that I am in the right place   I have a 17 year old daughter with a malformation in her left arm. …

Started by Stephanie Parish

1 1 day ago
Reply by Shalon

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