AVM Survivors Network: Arteriovenous Malformation Support

We're AVM Survivors, Here For Your Support...

Discussion Forum (1,019)

Featured Discussions
Kim (Jaclyn's mom)

Excellent explanation of AVM treatment options!

http://www.youtube.com/watch?v=_w0GYoPy0A0

Started by Kim (Jaclyn's mom) in GeneralLatest Reply

Shalon

1000 Members Strong...and growing!

AVM Family, I am so thrilled to report that as of today our "little" support group has reached more than 1000 MEMBERS!!! What a very exci…

Started by Shalon in GeneralLatest Reply

Shalon

We Walked for AVM Awareness!

The walk was great!!! Albeit a tad cold and a little wet. It was still a wonderful event and I want to thank TAAF (with a special thanks to…

Started by Shalon in GeneralLatest Reply

Discussions Replies Latest Activity
Mindy DeLaTorre

Coma's & AVM's

Has anyone had a friend or family member in a coma as a result from an AVM. OR maybe you were in a coma yourself as a result of the AVM. My…

Started by Mindy DeLaTorre in General

2 2 hours ago
Reply by Joy
Steph C.

Confused..

So, I found out last Thursday that I had a bleed from what the doctor is calling a venous malformation, or a cavernous malformation.. Every…

Started by Steph C. in General

11 5 hours ago
Reply by Steph C.
mary kate

Fact or Fiction???

I'm very confused because I usualy come on this website to make me feel a little better, but recently, I have been reading people's discuss…

Started by mary kate in General

18 6 hours ago
Reply by Dewey M Reynolds
Norwin Lederer

Venous Drainage Lost

Hi there, Has anyone had any experience of the loss of one (or both) venous drainage systems in the brain.  My son (20 months), has an AVM…

Started by Norwin Lederer in General

1 8 hours ago
Reply by Gordon D
Michael A. Contés II

Survey: What year and how old were you when your AVM occurred?

I'm trying to do an unscientific survey of the earliest known AVM as it pertains to members of this Forum.  And, the purpose of my survey i…

Started by Michael A. Contés II in General

23 10 hours ago
Reply by Alexis Kaminsky
Kate H.

Anyone else at Barrows the week of March 15?

My son and I will be "camping" at Barrows in PX the week of March 15, 2010. Is anyone else going to be there?

Started by Kate H. in General

2 13 hours ago
Reply by Kate H.
Shalon

We Walked for AVM Awareness!

The walk was great!!! Albeit a tad cold and a little wet. It was still a wonderful event and I want to thank TAAF (with a special thanks to…

Started by Shalon in General

21 21 hours ago
Reply by Jordan Johnson
mary kate

When will I ever get my energy back

I had a bleed and craniotomy on November 7th. I am sooooooooo tired all the time. I am back at work( I teach 5th grade)  and have 3 kids (a…

Started by mary kate in General

6 1 day ago
Reply by Kim Palmer
Keith S

Pins and Needles

Has anyone found a way to lessen the weird and tingly pins and needles sensation? I have them from time to time and it goes from my left ar…

Started by Keith S in General

0 1 day ago
Gemma Broughton

Anyone from Ireland?

Hi all.  Thank you to all who answered my questions.  Really helpful.  I just wondered if there was anyone out there from Ireland who is a…

Started by Gemma Broughton in General

1 1 day ago
Reply by Jonah Brucker-Cohen

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